Literature DB >> 29143343

Secrets and disclosure in donor conception.

Lucy Frith1, Eric Blyth2, Marilyn Crawshaw3, Olga van den Akker4.   

Abstract

This article considers the disclosure, sharing and exchange of information on being donor conceived within families, drawing on data from a study undertaken with donor-conceived adults registered with UK Donor Link (a voluntary DNA-linking register). This paper considers the narratives of how respondents found out they were donor-conceived and what events triggered disclosure of this information. This paper then goes on to examine the role secrecy played in their family life and uses the concept of 'display' to explore how secrecy affected their relationships with their immediate and extended family. Secrets are notoriously 'leaky' and we found complex patterns of knowing and uncertainty about whom in the family knew that the person was donor-conceived. We argue that what is kept secret and from whom provides insights into the multifaceted web of social relationships that can be created by donor-conception, and how knowledge can be managed and controlled in attempts to display and maintain family narratives of biogenetic connection.
© 2017 Foundation for the Sociology of Health & Illness.

Entities:  

Keywords:  UK Donor Link; disclosure; display; family practices; gamete/sperm donor conception; reproductive secrets

Mesh:

Year:  2017        PMID: 29143343     DOI: 10.1111/1467-9566.12633

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  4 in total

1.  Managing absence and presence of child-parent resemblance: a challenge for heterosexual couples following sperm donation.

Authors:  Stina Isaksson; Gunilla Sydsjö; Agneta Skoog Svanberg; Claudia Lampic
Journal:  Reprod Biomed Soc Online       Date:  2019-07-23

2.  'Genes versus children': if the goal is parenthood, are we using the optimal approach?

Authors:  Jackson C Kirkman-Brown; Mariana V Martins
Journal:  Hum Reprod       Date:  2020-01-01       Impact factor: 6.918

3.  Good practice recommendations for information provision for those involved in reproductive donation.

Authors:  Jackson Kirkman-Brown; Carlos Calhaz-Jorge; Eline A F Dancet; Kersti Lundin; Mariana Martins; Kelly Tilleman; Petra Thorn; Nathalie Vermeulen; Lucy Frith
Journal:  Hum Reprod Open       Date:  2022-02-16

4.  Safety of Germline Genome Editing for Genetically Related "Future" Children as Perceived by Parents.

Authors:  Tetsuya Ishii; Iñigo de Miguel Beriain
Journal:  CRISPR J       Date:  2019-11-19
  4 in total

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