Literature DB >> 29132163

Optimized care in Patients with Rare Diseases: TSC at the Center for Rare Diseases (ZSEUKS) at Saarland University Medical Center, Germany.

Daniel Ebrahimi-Fakhari1, Martin Poryo2, Norbert Graf3, Michael Zemlin1, Marina Flotats-Bastardas1, Gunnar Heine4, Andreas Ragoschke-Schumm5, Sascha Meyer1.   

Abstract

Providing comprehensive medical care for patients with rare diseases is both challenging and rewarding. We will give a short summary of the most relevant medical issues pertinent to this subject, and will illustrate some of these issues by sharing our experience in the care of patients with TSC disease. © Georg Thieme Verlag KG Stuttgart · New York.

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Year:  2017        PMID: 29132163     DOI: 10.1055/s-0043-120069

Source DB:  PubMed          Journal:  Klin Padiatr        ISSN: 0300-8630            Impact factor:   1.349


  1 in total

1.  Editorial: New Therapeutic Options for Rare Diseases.

Authors:  Sascha Meyer; E Ann Yeh; Jürgen Brunner; Oliver Semler; Andrea Gropman
Journal:  Front Pediatr       Date:  2022-01-24       Impact factor: 3.418

  1 in total

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