Literature DB >> 29127257

Disclosure of genetic information to relatives: balancing confidentiality and relatives' interests.

Anneke Lucassen1, Roy Gilbar2,3.   

Abstract

Keywords:  confidentiality; disclosure; genetic information; law; professional guidelines

Mesh：

Year:  2017        PMID： 29127257     DOI： 10.1136/jmedgenet-2017-104843

Source DB:  PubMed          Journal:  J Med Genet        ISSN： 0022-2593            Impact factor:   6.318


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  3 in total

1.  Guidelines for Genetic Testing and Management of Alport Syndrome.

Authors:  Judy Savige; Beata S Lipska-Zietkiewicz; Elizabeth Watson; Jens Michael Hertz; Constantinos Deltas; Francesca Mari; Pascale Hilbert; Pavlina Plevova; Peter Byers; Agne Cerkauskaite; Martin Gregory; Rimante Cerkauskiene; Danica Galesic Ljubanovic; Francesca Becherucci; Carmela Errichiello; Laura Massella; Valeria Aiello; Rachel Lennon; Louise Hopkinson; Ania Koziell; Adrian Lungu; Hansjorg Martin Rothe; Julia Hoefele; Miriam Zacchia; Tamara Nikuseva Martic; Asheeta Gupta; Albertien van Eerde; Susie Gear; Samuela Landini; Viviana Palazzo; Laith Al-Rabadi; Kathleen Claes; Anniek Corveleyn; Evelien Van Hoof; Micheel van Geel; Maggie Williams; Emma Ashton; Hendica Belge; Elisabet Ars; Agnieszka Bierzynska; Concetta Gangemi; Alessandra Renieri; Helen Storey; Frances Flinter
Journal:  Clin J Am Soc Nephrol       Date:  2021-12-20       Impact factor: 8.237

2.  Using a genetic test result in the care of family members: how does the duty of confidentiality apply?

Authors:  Michael Parker; Anneke Lucassen
Journal:  Eur J Hum Genet       Date:  2018-04-27       Impact factor: 4.246

3.  User-focused data sharing agreements: a foundation for the genomic future.

Authors:  Carolyn Petersen
Journal:  JAMIA Open       Date:  2019-10-01
  3 in total

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