Joel Alcantara1, Jeanne Ohm2, Junjoe Alcantara3. 1. The International Chiropractic Pediatric Association, Media, PA, USA; Life Chiropractic College West, Hayward, CA, USA; 6017 Snell Avenue, Suite 441, San Jose, 95123, CA, USA. Electronic address: dr_jalcantara@yahoo.com. 2. The International Chiropractic Pediatric Association, Media, PA, USA; Private Practice of Chiropractic, 327 N Middletown Rd, Media, 19063, PA, USA. Electronic address: info@icpa4kids.com. 3. Private Practice of Chiropractic, Manila, Philippines; 25 San Miguel Avenue, Suite 2615 Medical Plaza Ortigas, Ortigas Business Center, Pasig City, Philippines. Electronic address: jun.dupax@gmail.com.
Abstract
OBJECTIVE: To measure the cross-informant variant of pediatric quality of life (QoL) based on self-reports and parent proxy measures. METHODS: A secondary analysis of baseline data obtained from two independent studies measuring the QoL based on the pediatric PROMIS-25 self-report and the PROMIS parent-proxy items banks. A scoring manual associated raw scores to a T score metric (mean = 50; SD = 10). Reliability of QoL ratings utilized the ICC while comparison of mean T Scores utilized the unpaired t-test. RESULTS: A total of 289 parent-child dyads comprised our study responders. Average age for parents and children was 41.27 years and 12.52 years, respectively. The mean T score (child self-report: parent proxy) for each QoL domains were: mobility (50.82:52.58), anxiety (46.73:44.21), depression (45.18:43.60), fatigue (45.59:43.92), peer-relationships (52.15:52.88) and pain interference (47.47:44.80). CONCLUSION: Parents tend to over-estimate their child's QoL based on measures of anxiety, depression, fatigue, peer-relationships and pain interference.
OBJECTIVE: To measure the cross-informant variant of pediatric quality of life (QoL) based on self-reports and parent proxy measures. METHODS: A secondary analysis of baseline data obtained from two independent studies measuring the QoL based on the pediatric PROMIS-25 self-report and the PROMIS parent-proxy items banks. A scoring manual associated raw scores to a T score metric (mean = 50; SD = 10). Reliability of QoL ratings utilized the ICC while comparison of mean T Scores utilized the unpaired t-test. RESULTS: A total of 289 parent-child dyads comprised our study responders. Average age for parents and children was 41.27 years and 12.52 years, respectively. The mean T score (child self-report: parent proxy) for each QoL domains were: mobility (50.82:52.58), anxiety (46.73:44.21), depression (45.18:43.60), fatigue (45.59:43.92), peer-relationships (52.15:52.88) and pain interference (47.47:44.80). CONCLUSION: Parents tend to over-estimate their child's QoL based on measures of anxiety, depression, fatigue, peer-relationships and pain interference.
Authors: Samantha J Anthony; Katarina Young; Sarah J Pol; Enid K Selkirk; Tom Blydt-Hansen; Suzanne Boucher; Aviva Goldberg; Lorraine Hamiwka; Lotte Haverman; Joanna Mitchell; Simon Urschel; Maria Santana; Jennifer Stinson; Katie Sutherland; Lori J West Journal: Qual Life Res Date: 2021-01-14 Impact factor: 4.147