Literature DB >> 29119459

Ethics and Epistemology of Big Data.

Wendy Lipworth1, Paul H Mason2, Ian Kerridge3.   

Abstract

In this Symposium on the Ethics and Epistemology of Big Data, we present four perspectives on the ways in which the rapid growth in size of research databanks-i.e. their shift into the realm of "big data"-has changed their moral, socio-political, and epistemic status. While there is clearly something different about "big data" databanks, we encourage readers to place the arguments presented in this Symposium in the context of longstanding debates about the ethics, politics, and epistemology of biobank, database, genetic, and epidemiological research.

Keywords:  Big data; Biobank; Consent; Databank; Database; Privacy; Research ethics

Mesh:

Year:  2017        PMID: 29119459     DOI: 10.1007/s11673-017-9815-8

Source DB:  PubMed          Journal:  J Bioeth Inq        ISSN: 1176-7529            Impact factor:   1.352


  15 in total

1.  Monitoring ethical, legal, and social issues in developing population genetic databases.

Authors:  Melissa A Austin; Sarah E Harding; Courtney E McElroy
Journal:  Genet Med       Date:  2003 Nov-Dec       Impact factor: 8.822

2.  Inter- and intra-biobank networks: classification of biobanks.

Authors:  Darren Shickle; Marcus Griffin; Karen El-Arifi
Journal:  Pathobiology       Date:  2010-07-07       Impact factor: 4.342

Review 3.  The ethics of biobanks.

Authors:  Sven Ove Hansson
Journal:  Camb Q Healthc Ethics       Date:  2004       Impact factor: 1.284

4.  Finding the missing link for big biomedical data.

Authors:  Griffin M Weber; Kenneth D Mandl; Isaac S Kohane
Journal:  JAMA       Date:  2014-06-25       Impact factor: 56.272

5.  Big Data and Health Research-The Governance Challenges in a Mixed Data Economy.

Authors:  Søren Holm; Thomas Ploug
Journal:  J Bioeth Inq       Date:  2017-10-04       Impact factor: 1.352

6.  Evidence based medicine: what it is and what it isn't.

Authors:  D L Sackett; W M Rosenberg; J A Gray; R B Haynes; W S Richardson
Journal:  BMJ       Date:  1996-01-13

Review 7.  Retained human tissues: a molecular genetics goldmine or modern grave robbing? A legal approach to obtaining and using stored human samples.

Authors:  Ian Ellis; G Mannion; A Warren-Jones
Journal:  Med Law       Date:  2003

Review 8.  Data sharing in genomics--re-shaping scientific practice.

Authors:  Jane Kaye; Catherine Heeney; Naomi Hawkins; Jantina de Vries; Paula Boddington
Journal:  Nat Rev Genet       Date:  2009-05       Impact factor: 53.242

9.  Criminal Prohibition of Wrongful Re‑identification: Legal Solution or Minefield for Big Data?

Authors:  Mark Phillips; Edward S Dove; Bartha M Knoppers
Journal:  J Bioeth Inq       Date:  2017-09-14       Impact factor: 1.352

10.  Biomedical Big Data: New Models of Control Over Access, Use and Governance.

Authors:  Effy Vayena; Alessandro Blasimme
Journal:  J Bioeth Inq       Date:  2017-10-05       Impact factor: 1.352

View more
  5 in total

1.  Power to the People?

Authors:  Michael A Ashby; Bronwen Morrell
Journal:  J Bioeth Inq       Date:  2017-11-15       Impact factor: 1.352

2.  Big Data in occupational medicine: the convergence of -omics sciences, participatory research and e-health.

Authors:  Guglielmo Dini; Nicola Luigi Bragazzi; Alfredo Montecucco; Alessandra Toletone; Nicoletta Debarbieri; Paolo Durando
Journal:  Med Lav       Date:  2019-04-19       Impact factor: 1.275

3.  Sharing linked data sets for research: results from a deliberative public engagement event in British Columbia, Canada.

Authors:  Jack Teng; Colene Bentley; Michael M Burgess; Kieran C O'Doherty; Kimberlyn M McGrail
Journal:  Int J Popul Data Sci       Date:  2019-05-07

Review 4.  Vaccines Meet Big Data: State-of-the-Art and Future Prospects. From the Classical 3Is ("Isolate-Inactivate-Inject") Vaccinology 1.0 to Vaccinology 3.0, Vaccinomics, and Beyond: A Historical Overview.

Authors:  Nicola Luigi Bragazzi; Vincenza Gianfredi; Milena Villarini; Roberto Rosselli; Ahmed Nasr; Amr Hussein; Mariano Martini; Masoud Behzadifar
Journal:  Front Public Health       Date:  2018-03-05

5.  Science at Warp Speed: Medical Research, Publication, and Translation During the COVID-19 Pandemic.

Authors:  Wendy Lipworth; Melanie Gentgall; Ian Kerridge; Cameron Stewart
Journal:  J Bioeth Inq       Date:  2020-08-25       Impact factor: 1.352

  5 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.