Literature DB >> 29117849

Seeking Ways to Inform the Uninformed: Improving the Informed Consent Process in Online Social Science Research.

Evan K Perrault1, David M Keating2.   

Abstract

Participants often do not read consent forms in social science research. This is not surprising, especially for online studies, given they do not typically offer greater risk than what is encountered in daily life. However, if no one is reading, are participants really informed? This study used previous research to craft experimentally manipulated consent forms utilizing different visual presentations (e.g., greater use of line spacing, bullets, bolding, diagrams). Participants ( n = 547) were randomly exposed to one of seven form variations. Results found no significant differences between forms in reading or comprehension. Open-ended questions asked participants why they do not read consent forms and what would influence them to read the forms. Participants most frequently stated forms need to be shorter, and important information needs to be highlighted. We suggest improvements to informed consent forms, including removing much of the information that is constant across forms, and only including unique aspects of studies.

Entities:  

Keywords:  comprehension; improvements; informed consent; online; social science

Mesh:

Year:  2017        PMID: 29117849     DOI: 10.1177/1556264617738846

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  5 in total

1.  Facilitating Informed Permission/Assent/Consent in Pediatric Clinical Trials.

Authors:  Susan M Abdel-Rahman
Journal:  Paediatr Drugs       Date:  2019-08       Impact factor: 3.022

2.  Effectiveness of a digital intervention versus alcohol information for online help-seekers in Sweden: a randomised controlled trial.

Authors:  Marcus Bendtsen; Katarina Åsberg; Jim McCambridge
Journal:  BMC Med       Date:  2022-05-17       Impact factor: 11.150

3.  Reimagining IRB review to incorporate a clear and convincing standard of evidence.

Authors:  E Smith; E E Anderson
Journal:  Account Res       Date:  2021-02-08       Impact factor: 2.622

4.  Development of an online research platform for use in a large-scale multicentre study.

Authors:  A R Godden; A Micha; C Pitches; P A Barry; K D C Krupa; J E Rusby
Journal:  BJS Open       Date:  2021-01-08

5.  Informed Consent for Mobile Phone Health Surveys in Colombia: A Qualitative Study.

Authors:  Mariana Rodriguez-Patarroyo; Angelica Torres-Quintero; Andres I Vecino-Ortiz; Kristina Hallez; Aixa Natalia Franco-Rodriguez; Eduardo A Rueda Barrera; Stephanie Puerto; Dustin G Gibson; Alain Labrique; George W Pariyo; Joseph Ali
Journal:  J Empir Res Hum Res Ethics       Date:  2020-09-25       Impact factor: 1.742

  5 in total

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