Claire Tanner1, Alan Petersen2, Megan Munsie1. 1. Department of Anatomy & Neuroscience, Center for Stem Cell Systems, The University of Melbourne, Parkville, Victoria, Australia. 2. Sociology, School of Social Sciences, Monash University, Clayton, Victoria, Australia.
Abstract
AIM: This article examines how those who contemplate purported stem cell treatments (SCTs) negotiate available information sources and the adequacy of current approaches to guidance and support. MATERIALS & METHODS: Qualitative interviews undertaken with people who had contemplated or undergone purported SCTs for a range of conditions (n = 24 and n = 27, respectively), as well as professionals who are frequently asked about SCTs (n = 20) were analyzed. RESULTS: Our findings reveal the difficulties for individuals in discriminating between different sources of information on SCTs and the limitations of current responses. CONCLUSION: In the context of contending information about SCTs informal ('accidental') advisors potentially play a crucial role in supporting patients. Additional approaches are also required to better address patients' needs.
AIM: This article examines how those who contemplate purported stem cell treatments (SCTs) negotiate available information sources and the adequacy of current approaches to guidance and support. MATERIALS & METHODS: Qualitative interviews undertaken with people who had contemplated or undergone purported SCTs for a range of conditions (n = 24 and n = 27, respectively), as well as professionals who are frequently asked about SCTs (n = 20) were analyzed. RESULTS: Our findings reveal the difficulties for individuals in discriminating between different sources of information on SCTs and the limitations of current responses. CONCLUSION: In the context of contending information about SCTs informal ('accidental') advisors potentially play a crucial role in supporting patients. Additional approaches are also required to better address patients' needs.
Authors: Jeremy Sugarman; Roger A Barker; Ian Kerridge; Tamra Lysaght; Graziella Pellegrini; Douglas Sipp; Claire Tanner Journal: Stem Cell Reports Date: 2018-11-13 Impact factor: 7.765
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