Literature DB >> 29097906

Reflections of a community-based participatory researcher from the intersection of disability advocacy, engineering, and the academy.

Dora M Raymaker1.   

Abstract

This article uses an evocative autoethnographic approach to explore the experience of being an insider-researcher in a community-based participatory research setting. Taking a holistic perspective and using the form of narrative story-telling, I examine the dynamics between the typically marginalizing (but sometimes empowering) experience of being an autistic woman and the typically privileging (but sometimes oppressive) experience of being an engineering professional, during a time of career upheaval. Themes of motivations and mentors, adversity from social services and the academy, belonging, the slipperiness of intersectional positioning, feedback cycles of opportunity, dichotomies of competence and inadequacy, heightened stakes, and power and resistance are explored through the narrative. While primarily leaving the narrative to speak for itself per the qualitative approach taken, the article concludes with a discussion of how the personal experiences described relate both to the broader work of insider-researchers within disability-related fields, and to misconceptions about self-reflection and capacity for story-telling in individuals on the autism spectrum.

Entities:  

Keywords:  Autoethnography; autism; community-based participatory research; critical systems thinking; insider-researcher; intersectionality

Year:  2016        PMID: 29097906      PMCID: PMC5662106          DOI: 10.1177/1476750316636669

Source DB:  PubMed          Journal:  Action Res (Lond)        ISSN: 1476-7503


  7 in total

1.  Community-based participatory research: policy recommendations for promoting a partnership approach in health research.

Authors:  B A Israel; A J Schulz; E A Parker; A B Becker
Journal:  Educ Health (Abingdon)       Date:  2001

2.  Checking an integrated model of web accessibility and usability evaluation for disabled people.

Authors:  Stefano Federici; Andrea Micangeli; Irene Ruspantini; Stefano Borgianni; Fabrizio Corradi; Emanuele Pasqualotto; Marta Olivetti Belardinelli
Journal:  Disabil Rehabil       Date:  2005-07-08       Impact factor: 3.033

3.  Brief report: narratives of personal events in children with autism and developmental language disorders: unshared memories.

Authors:  Sylvie Goldman
Journal:  J Autism Dev Disord       Date:  2008-05-30

Review 4.  Autism.

Authors:  U Frith
Journal:  Sci Am       Date:  1993-06       Impact factor: 2.142

5.  Collaboration strategies in nontraditional community-based participatory research partnerships: lessons from an academic−community partnership with autistic self-advocates.

Authors:  Christina Nicolaidis; Dora Raymaker; Katherine McDonald; Sebastian Dern; Elesia Ashkenazy; Cody Boisclair; Scott Robertson; Amanda Baggs
Journal:  Prog Community Health Partnersh       Date:  2011

6.  Failing to deactivate: resting functional abnormalities in autism.

Authors:  Daniel P Kennedy; Elizabeth Redcay; Eric Courchesne
Journal:  Proc Natl Acad Sci U S A       Date:  2006-05-15       Impact factor: 11.205

7.  Paradigm shifts in disability and health: toward more ethical public health research.

Authors:  Katherine E McDonald; Dora M Raymaker
Journal:  Am J Public Health       Date:  2013-10-17       Impact factor: 9.308

  7 in total
  4 in total

1.  The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants.

Authors:  Christina Nicolaidis; Dora Raymaker; Steven K Kapp; Amelia Baggs; E Ashkenazy; Katherine McDonald; Michael Weiner; Joelle Maslak; Morrigan Hunter; Andrea Joyce
Journal:  Autism       Date:  2019-04-03

2.  Early Assessment and Support Alliance Connections: Community-Based Participatory Research to Develop a Peer-based Early Psychosis Web Resource with Young Adults.

Authors:  Dora M Raymaker; Tamara Sale; Mariam Rija; Nicholas Buekea; Nybelle Caruso; Ryan Melton; Natalie Cohrs; Veronica Gould; Christina Wall; Mirah Scharer
Journal:  Prog Community Health Partnersh       Date:  2020

3.  Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations.

Authors:  Christina Nicolaidis; Dora M Raymaker; Katherine E McDonald; Emily M Lund; Sandra Leotti; Steven K Kapp; Marsha Katz; Leanne M Beers; Clarissa Kripke; Joelle Maslak; Morrigan Hunter; Kelly Y Zhen
Journal:  Autism Adulthood       Date:  2020-03-11

4.  "Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew": Defining Autistic Burnout.

Authors:  Dora M Raymaker; Alan R Teo; Nicole A Steckler; Brandy Lentz; Mirah Scharer; Austin Delos Santos; Steven K Kapp; Morrigan Hunter; Andee Joyce; Christina Nicolaidis
Journal:  Autism Adulthood       Date:  2020-06-10
  4 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.