Literature DB >> 29090632

'Normal' and 'failing' mothers: Women's constructions of maternal subjectivity while living with multiple sclerosis.

Chloe Parton1, Terri Katz1, Jane M Ussher1.   

Abstract

Multiple sclerosis causes physical and cognitive impairment that can impact women's experiences of motherhood. This study examined how women construct their maternal subjectivities, or sense of self as a mother, drawing on a framework of biographical disruption. A total of 20 mothers with a multiple sclerosis diagnosis took part in semi-structured interviews. Transcripts were analysed using thematic decomposition to identify subject positions that women adopted in relation to cultural discourses of gender, motherhood and illness. Three main subject positions were identified: 'The Failing Mother', 'Fear of Judgement and Burdening Others' and 'The Normal Mother'. Women's sense of self as the 'Failing Mother' was attributed to the impact of multiple sclerosis, contributing to biographical disruption and reinforced through 'Fear of Judgement and Burdening Others' within social interactions. In accounts of the 'Normal Mother', maternal subjectivity was renegotiated by adopting strategies to manage the limitations of multiple sclerosis on mothering practice. This allowed women to self-position as 'good' mothers. Health professionals can assist women by acknowledging the embodied impact of multiple sclerosis on maternal subjectivities, coping strategies that women employ to address potential biographical disruption, and the cultural context of mothering, which contributes to women's experience of subjectivity and well-being when living with multiple sclerosis.

Entities:  

Keywords:  chronic illness and disability; discourse analysis; experiencing illness and narratives; gender and health; multiple sclerosis; post-structuralism/postmodernism

Mesh:

Year:  2017        PMID: 29090632     DOI: 10.1177/1363459317739442

Source DB:  PubMed          Journal:  Health (London)        ISSN: 1363-4593


  6 in total

1.  Understanding quality of life across different clinical subtypes of multiple sclerosis: a thematic analysis.

Authors:  Hikari Ando; Rosanna Cousins; Carolyn A Young
Journal:  Qual Life Res       Date:  2021-11-25       Impact factor: 4.147

2.  Negotiating mental health amongst transgender parents in Australia.

Authors:  Rosie Charter; Jane Ussher; Janette Perz; Kerry Robinson
Journal:  Int J Transgend Health       Date:  2021-02-11

3.  Mothers' experiences of wellbeing and coping while living with rheumatoid arthritis: a qualitative study.

Authors:  Chloe Parton; Jane M Ussher; Janette Perz
Journal:  BMC Womens Health       Date:  2022-05-19       Impact factor: 2.742

4.  Pregnancy and Motherhood Concerns Surrounding Women with Multiple Sclerosis: A Qualitative Content Analysis.

Authors:  Faezeh Ghafoori; Nahid Dehghan-Nayeri; Zohreh Khakbazan; Mahmoud Hedayatnejad; Seyed Massood Nabavi
Journal:  Int J Community Based Nurs Midwifery       Date:  2020-01

Review 5.  'It struck at the heart of who I thought I was': A meta-synthesis of the qualitative literature examining the experiences of people with multiple sclerosis.

Authors:  Jane Desborough; Crystal Brunoro; Anne Parkinson; Katrina Chisholm; Mark Elisha; Janet Drew; Vanessa Fanning; Christian Lueck; Anne Bruestle; Matthew Cook; Hanna Suominen; Antonio Tricoli; Adam Henschke; Christine Phillips
Journal:  Health Expect       Date:  2020-06-24       Impact factor: 3.377

6.  Disrupted mothering in Iranian mothers with breast cancer: a hybrid concept analysis.

Authors:  Effat Mazaheri; Akram Ghahramanian; Leila Valizadeh; Vahid Zamanzadeh; Tonia C Onyeka
Journal:  BMC Womens Health       Date:  2021-06-05       Impact factor: 2.809

  6 in total

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