Literature DB >> 29063571

Health Data for Public Health: Towards New Ways of Combining Data Sources to Support Research Efforts in Europe.

A Burgun, E Bernal-Delgado, W Kuchinke, T van Staa, J Cunningham, E Lettieri, C Mazzali, D Oksen, F Estupiñan, A Barone, G Chène.   

Abstract

Objectives: To present the European landscape regarding the re-use of health administrative data for research.
Methods: We present some collaborative projects and solutions that have been developed by Nordic countries, Italy, Spain, France, Germany, and the UK, to facilitate access to their health data for research purposes.
Results: Research in public health is transitioning from siloed systems to more accessible and re-usable data resources. Following the example of the Nordic countries, several European countries aim at facilitating the re-use of their health administrative databases for research purposes. However, the ecosystem is still a complex patchwork, with different rules, policies, and processes for data provision.
Conclusion: The challenges are such that with the abundance of health administrative data, only a European, overarching public health research infrastructure, is able to efficiently facilitate access to this data and accelerate research based on these highly valuable resources. Georg Thieme Verlag KG Stuttgart.

Entities:  

Mesh:

Year:  2017        PMID: 29063571      PMCID: PMC6239221          DOI: 10.15265/IY-2017-034

Source DB:  PubMed          Journal:  Yearb Med Inform        ISSN: 0943-4747


  39 in total

1.  The Danish National Health Service Register.

Authors:  John Sahl Andersen; Niels De Fine Olivarius; Allan Krasnik
Journal:  Scand J Public Health       Date:  2011-07       Impact factor: 3.021

2.  Effectiveness and safety of drugs used for stroke prevention in a cohort of non-valvular atrial fibrillation patients from a primary care electronic database.

Authors:  Maria Giner-Soriano; Albert Roso-Llorach; Cristina Vedia Urgell; Xavier Castells; Dolors Capellà; Ignacio Ferreira-González; Josep Maria Elorza-Ricart; Marc Casajuana; Amelia Troncoso Mariño; Eduard Diògene; Bonaventura Bolíbar; Concepció Violan; Rosa Morros
Journal:  Pharmacoepidemiol Drug Saf       Date:  2016-11-20       Impact factor: 2.890

3.  ECHO: health care performance assessment in several European health systems.

Authors:  E Bernal-Delgado; T Christiansen; K Bloor; C Mateus; A M Yazbeck; J Munck; J Bremner
Journal:  Eur J Public Health       Date:  2015-02       Impact factor: 3.367

4.  A Multicentric Prospective Incidence Study of Guillain-Barré Syndrome in Italy. The ITANG Study.

Authors:  Maria Donata Benedetti; Maura Pugliatti; Roberto D'Alessandro; Ettore Beghi; Adriano Chiò; Giancarlo Logroscino; Graziella Filippini; Francesca Galeotti; Marco Massari; Carmela Santuccio; Roberto Raschetti
Journal:  Neuroepidemiology       Date:  2015-08-29       Impact factor: 3.282

5.  Validating mortality in the German Pharmacoepidemiological Research Database (GePaRD) against a mortality registry.

Authors:  Christoph Ohlmeier; Ingo Langner; Edeltraut Garbe; Oliver Riedel
Journal:  Pharmacoepidemiol Drug Saf       Date:  2016-04-07       Impact factor: 2.890

6.  Registers of the Swedish total population and their use in medical research.

Authors:  Jonas F Ludvigsson; Catarina Almqvist; Anna-Karin Edstedt Bonamy; Rickard Ljung; Karl Michaëlsson; Martin Neovius; Olof Stephansson; Weimin Ye
Journal:  Eur J Epidemiol       Date:  2016-01-14       Impact factor: 8.082

7.  The social licence for research: why care.data ran into trouble.

Authors:  Pam Carter; Graeme T Laurie; Mary Dixon-Woods
Journal:  J Med Ethics       Date:  2015-01-23       Impact factor: 2.903

8.  Colorectal cancer mortality 10 years after a single round of guaiac faecal occult blood test (gFOBT) screening: experiences from a Danish screening cohort.

Authors:  Andreas Bjerrum; Ole Andersen; Anders Fischer; Jan Lindebjerg; Elsebeth Lynge
Journal:  BMJ Open Gastroenterol       Date:  2016-12-07

9.  Factors associated with hospitalisations in chronic conditions deemed avoidable: ecological study in the Spanish healthcare system.

Authors:  Ester Angulo-Pueyo; Manuel Ridao-López; Natalia Martínez-Lizaga; Sandra García-Armesto; Salvador Peiró; Enrique Bernal-Delgado
Journal:  BMJ Open       Date:  2017-02-24       Impact factor: 2.692

10.  Estimating the prevalence of depression associated with healthcare use in France using administrative databases.

Authors:  Antoine Filipovic-Pierucci; Solène Samson; Jean-Paul Fagot; Anne Fagot-Campagna
Journal:  BMC Psychiatry       Date:  2017-01-03       Impact factor: 3.630

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  3 in total

1.  Integrating Electronic Medical Records and Claims Data for Influenza Vaccine Research.

Authors:  Constantina Boikos; Mahrukh Imran; Simon De Lusignan; Justin R Ortiz; Peter A Patriarca; James A Mansi
Journal:  Vaccines (Basel)       Date:  2022-05-06

Review 2.  Availability of open data for spatial public health research.

Authors:  Manuela Peters; Hajo Zeeb
Journal:  Ger Med Sci       Date:  2022-03-04

3.  Cross-national health care database utilization between Spain and France: results from the EPICHRONIC study assessing the prevalence of type 2 diabetes mellitus.

Authors:  Guillaume Moulis; Berta Ibañez; Aurore Palmaro; Felipe Aizpuru; Eduardo Millan; Maryse Lapeyre-Mestre; Laurent Sailler; Koldo Cambra
Journal:  Clin Epidemiol       Date:  2018-07-27       Impact factor: 4.790

  3 in total

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