Literature DB >> 29034669

[The Seintinelles: an innovative approach to promoting Community-Based Research and sustaining health democracy in oncology].

Charlotte Bauquier, Myriam Pannard, Marie Préau.   

Abstract

Community-based research drives innovation in major fields of public health, HIV/AIDS being the most emblematic example (Demange, Henry & Préau, 2012), and hepatitis. However, this type of research appears to be more difficult to develop in certain specific diseases, such as cancer (Shankand, Saïas & Friboulet, 2009). This article proposes various approaches concerning current citizen mobilization in relation to cancer research, including potential new levers to the development of participative and community-based research based on the recent creation of the Seintinelles platform, designed to federate researchers and citizens concerned by the problem of cancer. This reflection will be supported by more global issues concerning health democracy.

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Year:  2017        PMID: 29034669     DOI: 10.3917/spub.174.0547

Source DB:  PubMed          Journal:  Sante Publique        ISSN: 0995-3914            Impact factor:   0.203


  2 in total

1.  Cognitive complaints in cancer survivors and expectations for support: Results from a web-based survey.

Authors:  Marie Lange; Idlir Licaj; Bénédicte Clarisse; Xavier Humbert; Jean-Michel Grellard; Laure Tron; Florence Joly
Journal:  Cancer Med       Date:  2019-03-18       Impact factor: 4.452

2.  Analysing breast cancer survivors' acceptance profiles for using an electronic pillbox connected to a smartphone application using Seintinelles, a French community-based research tool.

Authors:  Catherine Goetzinger; Caroline Alleaume; Anna Schritz; Bernard Vrijens; Marie Préau; Guy Fagherazzi; Laetitia Huiart
Journal:  Front Pharmacol       Date:  2022-09-27       Impact factor: 5.988

  2 in total

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