Literature DB >> 29025350

The patient with a complex chronic respiratory disease: a specialist of his own life?

Sarah Houben-Wilke1, Ingrid Ml Augustin1, Birgit Bref Wouters2, Rosita Ah Stevens1, Daisy Ja Janssen1,3, Martijn A Spruit1,4, Lowie Egw Vanfleteren1,5, Frits Me Franssen1,5, Emiel Fm Wouters1,5.   

Abstract

INTRODUCTION: The independent and central role of the patient with a complex chronic respiratory disease in targeted, personalized disease management strategies is becoming increasingly important. Patients are the ones living with the disease and are finally responsible for their lives underlining their role as essential members of the interdisciplinary treatment team. Areas covered: The present paper narratively reviews existing research and discusses the special, as well as specialized, role of the patient with a complex chronic respiratory disease in the healthcare system and highlights fundamental elements of the (future) relationship between patient and healthcare professionals. Expert commentary: Since the chronic respiratory disease at hand is part of the patient's entire life, we need holistic, personalized approaches optimizing patients' quality of life by not only treating the disease but considering the patients' whole environment and where healthcare professionals and patients are co-creating value care.

Entities:  

Keywords:  Chronic obstructive pulmonary disease; expert patient; self-management; shared decision making; value-based health care

Mesh:

Year:  2017        PMID: 29025350     DOI: 10.1080/17476348.2017.1392242

Source DB:  PubMed          Journal:  Expert Rev Respir Med        ISSN: 1747-6348            Impact factor:   3.772


  3 in total

1.  "Being in Control of My Asthma Myself" Patient Experience of Asthma Management: A Qualitative Interpretive Description.

Authors:  Damilola T Olufemi-Yusuf; Sophie Beaudoin Gabriel; Tatiana Makhinova; Lisa M Guirguis
Journal:  Pharmacy (Basel)       Date:  2018-11-15

2.  Understanding and Being Understood: Information and Care Needs of 2113 Patients With Confirmed or Suspected COVID-19.

Authors:  Sarah Houben-Wilke; Jeannet M Delbressine; Anouk W Vaes; Yvonne Mj Goërtz; Roy Meys; Felipe Vc Machado; Maarten Van Herck; Chris Burtin; Rein Posthuma; Frits Me Franssen; Nicole Hp van Loon; Bita Hajian; Herman Vijlbrief; Yvonne Spies; Alex van 't Hul; Daisy Ja Janssen; Martijn A Spruit
Journal:  J Patient Exp       Date:  2021-03-08

Review 3.  Challenges to the Application of Integrated, Personalized Care for Patients with COPD-A Vision for the Role of Clinical Information.

Authors:  Lowie E G W Vanfleteren; Alex J van 't Hul; Katarzyna Kulbacka-Ortiz; Anders Andersson; Anders Ullman; Martin Ingvar
Journal:  J Clin Med       Date:  2020-05-02       Impact factor: 4.241

  3 in total

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