A Nimmo1, S Bell2, C Brunton3, J Campbell4, A Doyle5, B MacKinnon6, R K Peel7, S Robertson8, I Shilliday9, E Spalding10, J P Traynor4,6, W Metcalfe11,6. 1. Department of Renal Medicine, Royal Infirmary of Edinburgh, 51 Little France Crescent, Edinburgh EH16?4SA, UK. 2. Department of Renal Medicine, Ninewells Hospital, Dundee DD1?9SY, UK. 3. Department of Renal Medicine, Aberdeen Royal Infirmary, Foresterhill, Aberdeen AB25?2ZN, UK. 4. Scottish Renal Registry, Meridian Court, 5 Cagogan Street, Glasgow G2 6QE. 5. Department of Renal Medicine, Victoria Hospital, Hayfield Road, Kirkcaldy, KY2 5AH UK. 6. Department of Renal Medicine, Queen Elizabeth University Hospital, 1345 Govan Road, Glasgow G51 4TF UK. 7. Department of Renal Medicine, Raigmore Hospital, Old Perth Road, Inverness IV2 3UJ UK. 8. Department of Renal Medicine, Dumfries and Galloway Royal Infirmary, Bankend Road, Dumfries, DG1 4AP, UK. 9. Department of Renal Medicine, Monklands Hospital, Monkscourt Avenue, Airdrie, ML6 0JS, UK. 10. Department of Renal Medicine, University Hospital Crosshouse, Kilmarnock Road, Crosshouse, KA2 0BE, UK. 11. Department of Renal Medicine, Royal Infirmary of Edinburgh, 51 Little France Crescent, Edinburgh EH16 4SA, UK.
Abstract
BACKGROUND/ INTRODUCTION: Patient reported outcome measures (PROMs) can evaluate the quality of health in patients with established renal failure. There is limited experience of their use within national renal registries. AIM: To describe the Scottish Renal Registry's (SRR) experience of collecting PROMS in the haemodialysis population and correlate PROMS to demographic and clinical parameters. DESIGN: Retrospective observational cross-sectional study. METHODS: Haemodialysis patients in Scotland were invited to complete the KDQOL™-36 questionnaire on the day of the annual SRR census in 2015 and 2016. Questionnaires were linked to census demographic and clinical variables. RESULTS: In 2016, 738 questionnaires were linked to census data (39% of prevalent haemodialysis population). Response rates differed with age (≥ 65 years 42%, < 65 years 36%) [χ2P = 0.006]; duration of renal replacement therapy (<1 year 46%, ≥1 < 5 years 38%, ≥ 5 years 33%) [χ2P = 0.002] and social class (Scottish Index of Multiple Deprivation (SIMD) Class 1 32%, Class 2 41%, Class 3 40%, Class 4 48%, Class 5 40%) [χ2P < 0.001]. There were significant differences in PROMs with age, SIMD quintile and primary renal diagnosis. Achieving a urea reduction ratio of >65% and dialysing through arteriovenous access were associated with significantly higher PROMs. PROMs were not affected by haemoglobin or phosphate concentration. DISCUSSION/ CONCLUSIONS: Routine collection of PROMs is feasible and can identify potentially under-recognized and treatable determinants to quality of life. The association between attaining recommended standards of care and improved PROMs is striking. Individual and population-wide strategies are required to improve PROMs.
BACKGROUND/ INTRODUCTION: Patient reported outcome measures (PROMs) can evaluate the quality of health in patients with established renal failure. There is limited experience of their use within national renal registries. AIM: To describe the Scottish Renal Registry's (SRR) experience of collecting PROMS in the haemodialysis population and correlate PROMS to demographic and clinical parameters. DESIGN: Retrospective observational cross-sectional study. METHODS: Haemodialysis patients in Scotland were invited to complete the KDQOL™-36 questionnaire on the day of the annual SRR census in 2015 and 2016. Questionnaires were linked to census demographic and clinical variables. RESULTS: In 2016, 738 questionnaires were linked to census data (39% of prevalent haemodialysis population). Response rates differed with age (≥ 65 years 42%, < 65 years 36%) [χ2P = 0.006]; duration of renal replacement therapy (<1 year 46%, ≥1 < 5 years 38%, ≥ 5 years 33%) [χ2P = 0.002] and social class (Scottish Index of Multiple Deprivation (SIMD) Class 1 32%, Class 2 41%, Class 3 40%, Class 4 48%, Class 5 40%) [χ2P < 0.001]. There were significant differences in PROMs with age, SIMD quintile and primary renal diagnosis. Achieving a urea reduction ratio of >65% and dialysing through arteriovenous access were associated with significantly higher PROMs. PROMs were not affected by haemoglobin or phosphate concentration. DISCUSSION/ CONCLUSIONS: Routine collection of PROMs is feasible and can identify potentially under-recognized and treatable determinants to quality of life. The association between attaining recommended standards of care and improved PROMs is striking. Individual and population-wide strategies are required to improve PROMs.
Authors: Yiman Wang; Jaapjan D Snoep; Marc H Hemmelder; Koen E A van der Bogt; Willem Jan W Bos; Paul J M van der Boog; Friedo W Dekker; Aiko P J de Vries; Yvette Meuleman Journal: Clin Kidney J Date: 2021-01-20
Authors: Esmee M van der Willik; Yvette Meuleman; Karen Prantl; Giel van Rijn; Willem Jan W Bos; Frans J van Ittersum; Hans A J Bart; Marc H Hemmelder; Friedo W Dekker Journal: BMC Nephrol Date: 2019-09-02 Impact factor: 2.388
Authors: Esmee M van der Willik; Marc H Hemmelder; Hans A J Bart; Frans J van Ittersum; Judith M Hoogendijk-van den Akker; Willem Jan W Bos; Friedo W Dekker; Yvette Meuleman Journal: Clin Kidney J Date: 2020-02-03