Rebecca Giguere1, William Brown1,2, Ivan C Balán1, Curtis Dolezal1, Titcha Ho1, Alan Sheinfil1,3, Mobolaji Ibitoye4, Javier R Lama5, Ian McGowan6, Ross D Cranston6, Alex Carballo-Diéguez1. 1. HIV Center for Clinical and Behavioral Studies, Division of Gender, Sexuality, and Health, New York State Psychiatric Institute and Columbia University, New York, NY, USA. 2. Center for AIDS Prevention Studies, Department of Medicine, University of California San Francisco, San Francisco, CA, USA. 3. Department of Psychology, Syracuse University, Syracuse, NY, USA. 4. Department of Sociomedical Sciences, Mailman School of Public Health, Columbia University, New York, NY, USA. 5. Asociación Civil Impacta Salud y Educación, Lima, Peru. 6. School of Medicine, University of Pittsburgh, Pittsburgh, PA, USA.
Abstract
Objective: During a Phase 2 rectal microbicide trial, men who have sex with men and transgender women (n = 187) in 4 countries (Peru, South Africa, Thailand, United States) reported product use daily via short message service (SMS). To prevent disclosure of study participation, the SMS system program included privacy and security features. We evaluated participants' perceptions of privacy while using the system and acceptability of privacy/security features. Materials and Methods: To protect privacy, the SMS system: (1) confirmed participant availability before sending the study questions, (2) required a password, and (3) did not reveal product name or study participation. To ensure security, the system reminded participants to lock phone/delete messages. A computer-assisted self-interview (CASI), administered at the final visit, measured burden of privacy and security features and SMS privacy concerns. A subsample of 33 participants underwent an in-depth interview (IDI). Results: Based on CASI, 85% had no privacy concerns; only 5% were very concerned. Most were not bothered by the need for a password (73%) or instructions to delete messages (82%). Based on IDI, reasons for low privacy concerns included sending SMS in private or feeling that texting would not draw attention. A few IDI participants found the password unnecessary and more than half did not delete messages. Discussion: Most participants were not concerned that the SMS system would compromise their confidentiality. SMS privacy and security features were effective and not burdensome. Conclusion: Short ID-related passwords, ambiguous language, and reminders to implement privacy and security-enhancing behaviors are recommended for SMS systems.
Objective: During a Phase 2 rectal microbicide trial, men who have sex with men and transgender women (n = 187) in 4 countries (Peru, South Africa, Thailand, United States) reported product use daily via short message service (SMS). To prevent disclosure of study participation, the SMS system program included privacy and security features. We evaluated participants' perceptions of privacy while using the system and acceptability of privacy/security features. Materials and Methods: To protect privacy, the SMS system: (1) confirmed participant availability before sending the study questions, (2) required a password, and (3) did not reveal product name or study participation. To ensure security, the system reminded participants to lock phone/delete messages. A computer-assisted self-interview (CASI), administered at the final visit, measured burden of privacy and security features and SMS privacy concerns. A subsample of 33 participants underwent an in-depth interview (IDI). Results: Based on CASI, 85% had no privacy concerns; only 5% were very concerned. Most were not bothered by the need for a password (73%) or instructions to delete messages (82%). Based on IDI, reasons for low privacy concerns included sending SMS in private or feeling that texting would not draw attention. A few IDI participants found the password unnecessary and more than half did not delete messages. Discussion: Most participants were not concerned that the SMS system would compromise their confidentiality. SMS privacy and security features were effective and not burdensome. Conclusion: Short ID-related passwords, ambiguous language, and reminders to implement privacy and security-enhancing behaviors are recommended for SMS systems.
Authors: Walter H Curioso; D Alex Quistberg; Robinson Cabello; Ernesto Gozzer; Patricia J Garcia; King K Holmes; Ann E Kurth Journal: AMIA Annu Symp Proc Date: 2009-11-14
Authors: Tamaryn Crankshaw; Inge B Corless; Janet Giddy; Patrice K Nicholas; Quentin Eichbaum; Lisa M Butler Journal: AIDS Patient Care STDS Date: 2010-11-01 Impact factor: 5.078
Authors: Susannah Allison; Jose A Bauermeister; Sheana Bull; Marguerita Lightfoot; Brian Mustanski; Ross Shegog; Deb Levine Journal: J Adolesc Health Date: 2012-09 Impact factor: 5.012
Authors: Rashmi Rodrigues; S Poongulali; Kavitha Balaji; Salla Atkins; Per Ashorn; Ayesha De Costa Journal: BMJ Open Date: 2015-11-02 Impact factor: 2.692
Authors: Sarah MacCarthy; Alexandra Mendoza-Graf; Uzaib Saya; Clare Samba; Josephine Birungi; Stephen Okoboi; Sebastian Linnemayr Journal: AIDS Care Date: 2019-05-28
Authors: Timothy R Muwonge; Kenneth Ngure; Elly Katabira; Nelly Mugo; Grace Kimemia; Bridget Frances O'Rourke Burns; Nicholas Musinguzi; Felix Bambia; Jared M Baeten; Renee Heffron; Jessica E Haberer Journal: AIDS Behav Date: 2019-05
Authors: William Brown; Rebecca Giguere; Alan Sheinfil; Mobolaji Ibitoye; Ivan Balan; Titcha Ho; Benjamin Brown; Luis Quispe; Wichuda Sukwicha; Javier R Lama; Alex Carballo-Diéguez; Ross D Cranston Journal: J Biomed Inform Date: 2018-03-06 Impact factor: 6.317