Literature DB >> 29025034

An environmental scan of shared access to patient portals.

Jennifer L Wolff1, Victoria S Kim2, Suzanne Mintz3, Rebecca Stametz4, Joan M Griffin5.   

Abstract

We sought to understand the comprehensiveness of consumer-oriented information describing the availability of shared access to adult patient portals from publicly reported information on institutional websites of 20 large and geographically diverse health systems. All 20 health systems reported that they offer patients the ability to share access to their patient portal account with a family member or friend; however, the comprehensiveness of information regarding registration procedures, features, and terminology varied widely. Half of the systems (n = 10) reported having shared access available on their patient portal registration webpage. Few systems (n = 2) reported affording patients the ability to differentiate specific role-based privileges. No systems reported uptake of shared access among adult patients, which was variably described as "proxy," "caregiver," "parental," or "delegate" access. Findings suggest that engaging families through health information technology will require greater efforts to promote awareness and differentiate privileges that respect patients' choice and control in information-sharing preferences.

Entities:  

Mesh:

Year:  2018        PMID: 29025034      PMCID: PMC6658842          DOI: 10.1093/jamia/ocx088

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  11 in total

1.  Secure Messaging with Physicians by Proxies for Patients with Diabetes: Findings from the ECLIPPSE Study.

Authors:  Wagahta Semere; Scott Crossley; Andrew J Karter; Courtney R Lyles; William Brown; Mary Reed; Danielle S McNamara; Jennifer Y Liu; Dean Schillinger
Journal:  J Gen Intern Med       Date:  2019-08-19       Impact factor: 5.128

2.  Security and Privacy Risks Associated With Adult Patient Portal Accounts in US Hospitals.

Authors:  Celine Latulipe; Syeda Fatema Mazumder; Rachel K W Wilson; Jennifer W Talton; Alain G Bertoni; Sara A Quandt; Thomas A Arcury; David P Miller
Journal:  JAMA Intern Med       Date:  2020-06-01       Impact factor: 21.873

Review 3.  Genomics and electronic health record systems.

Authors:  Lucila Ohno-Machado; Jihoon Kim; Rodney A Gabriel; Grace M Kuo; Michael A Hogarth
Journal:  Hum Mol Genet       Date:  2018-05-01       Impact factor: 6.150

4.  Helping clinicians and patients navigate electronic patient portals: ethical and legal principles.

Authors:  S Mehta; T Jamieson; A D Ackery
Journal:  CMAJ       Date:  2019-10-07       Impact factor: 8.262

5.  A randomized intervention involving family to improve communication in breast cancer care.

Authors:  Jennifer L Wolff; Jennifer Aufill; Diane Echavarria; Amanda L Blackford; Roisin M Connolly; John H Fetting; Danijela Jelovac; Katie Papathakis; Carol Riley; Vered Stearns; Nelli Zafman; Elissa Thorner; Howard P Levy; Amy Guo; Sydney M Dy; Antonio C Wolff
Journal:  NPJ Breast Cancer       Date:  2021-02-12

6.  Family Caregiver Access of Online Medical Records: Findings from the Health Information National Trends Survey.

Authors:  Bradley Iott; Minakshi Raj; Jodyn Platt; Denise Anthony
Journal:  J Gen Intern Med       Date:  2020-12-02       Impact factor: 5.128

7.  Evaluating the Balance Between Privacy and Access in Digital Information Sharing.

Authors:  Sarah J Beesley; Alex Powell; Danielle Groat; Jorie Butler; Ramona O Hopkins; Ronen Rozenblum; Hanan Aboumatar; Allison M Butler; Jeremy Sugarman; Leslie Francis; Samuel M Brown
Journal:  Crit Care Med       Date:  2022-02-01       Impact factor: 9.296

Review 8.  Use of environmental scans in health services delivery research: a scoping review.

Authors:  Patricia Charlton; Terri Kean; Rebecca H Liu; Daniel A Nagel; Rima Azar; Shelley Doucet; Alison Luke; William Montelpare; Kim Mears; Leah Boulos
Journal:  BMJ Open       Date:  2021-11-10       Impact factor: 3.006

9.  Insights Into Older Adult Patient Concerns Around the Caregiver Proxy Portal Use: Qualitative Interview Study.

Authors:  Celine Latulipe; Sara A Quandt; Kathryn Altizer Melius; Alain Bertoni; David P Miller; Douglas Smith; Thomas A Arcury
Journal:  J Med Internet Res       Date:  2018-11-02       Impact factor: 5.428

10.  Assessment of Prevalence of Adolescent Patient Portal Account Access by Guardians.

Authors:  Wui Ip; Samuel Yang; Jacob Parker; Austin Powell; James Xie; Keith Morse; Rachael C Aikens; Jennifer Lee; Manjot Gill; Shravani Vundavalli; Yungui Huang; Jeannie Huang; Jonathan H Chen; Jeffrey Hoffman; Cynthia Kuelbs; Natalie Pageler
Journal:  JAMA Netw Open       Date:  2021-09-01
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