Literature DB >> 29022174

Challenges of Females with Autism: A Parental Perspective.

Marilena Mademtzi1, Pavita Singh2, Fred Shic3, Kathy Koenig4.   

Abstract

Most studies investigating the experiences and needs of individuals with ASD have largely focused on males. Hence, this study investigates parents' perspectives on the challenges that their daughters with ASD face. In total, 40 parents of 40 females with autism (age range = 4-29 years; mean = 15.9) participated in the study. Five separate, 2-h long focus groups were conducted, with 7-10 participants in each group. Field notes were analyzed using thematic analysis. Some of the issues parents discussed were similar to those experienced by males with ASD, such as challenges in social interactions. However, other issues discussed were of particular relevance to girls with ASD, including difficulties socializing with other girls, sex-specific puberty issues, barriers in accessing intervention and sexual vulnerability.

Entities:  

Keywords:  Autism; Autism Spectrum Disorders; Females; Focus group; Girls; Parents

Mesh:

Year:  2018        PMID: 29022174     DOI: 10.1007/s10803-017-3341-8

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  32 in total

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Journal:  Pediatrics       Date:  2001-02       Impact factor: 7.124

2.  Sex differences in autism spectrum disorder: evidence from a large sample of children and adolescents.

Authors:  William Mandy; Rebecca Chilvers; Uttom Chowdhury; Gemma Salter; Anna Seigal; David Skuse
Journal:  J Autism Dev Disord       Date:  2012-07

3.  Attention Finally Being Paid to Girls at Risk of Autism.

Authors:  Somer L Bishop; Jeremy Veenstra-VanderWeele; Stephan J Sanders
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2016-03       Impact factor: 8.829

4.  The art of camouflage: Gender differences in the social behaviors of girls and boys with autism spectrum disorder.

Authors:  Michelle Dean; Robin Harwood; Connie Kasari
Journal:  Autism       Date:  2016-11-29

5.  Overview and Preliminary Evidence for a Social Skills and Self-Care Curriculum for Adolescent Females with Autism: The Girls Night Out Model.

Authors:  T Rene Jamison; Jessica Oeth Schuttler
Journal:  J Autism Dev Disord       Date:  2017-01

6.  How different are girls and boys above and below the diagnostic threshold for autism spectrum disorders?

Authors:  Katharina Dworzynski; Angelica Ronald; Patrick Bolton; Francesca Happé
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2012-06-26       Impact factor: 8.829

Review 7.  Research into patients' perspectives: relevance and usefulness of phenomenological sociology.

Authors:  Carol Edwards; Angie Titchen
Journal:  J Adv Nurs       Date:  2003-12       Impact factor: 3.187

8.  Prevalence and incidence of autism spectrum disorder in an Israeli population.

Authors:  Michael Davidovitch; Beatriz Hemo; Patricia Manning-Courtney; Eric Fombonne
Journal:  J Autism Dev Disord       Date:  2013-04

Review 9.  Global prevalence of autism and other pervasive developmental disorders.

Authors:  Mayada Elsabbagh; Gauri Divan; Yun-Joo Koh; Young Shin Kim; Shuaib Kauchali; Carlos Marcín; Cecilia Montiel-Nava; Vikram Patel; Cristiane S Paula; Chongying Wang; Mohammad Taghi Yasamy; Eric Fombonne
Journal:  Autism Res       Date:  2012-04-11       Impact factor: 5.216

10.  Quantifying and exploring camouflaging in men and women with autism.

Authors:  Meng-Chuan Lai; Michael V Lombardo; Amber Nv Ruigrok; Bhismadev Chakrabarti; Bonnie Auyeung; Peter Szatmari; Francesca Happé; Simon Baron-Cohen
Journal:  Autism       Date:  2016-11-29
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  4 in total

1.  The Scientific Study of Parents and Caregivers of Children with ASD: A Flourishing Field but Still Work to be Done.

Authors:  Anders Nordahl-Hansen; Logan Hart; Roald A Øien
Journal:  J Autism Dev Disord       Date:  2018-04

Review 2.  Barriers to Autism Spectrum Disorder Diagnosis for Young Women and Girls: a Systematic Review.

Authors:  Georgia Lockwood Estrin; Victoria Milner; Debbie Spain; Francesca Happé; Emma Colvert
Journal:  Rev J Autism Dev Disord       Date:  2020-10-29

3.  Gender Differences in Social Inclusion of Youth with Autism and Intellectual Disability.

Authors:  María Lucía Morán; Laura E Gómez; María Ángeles Alcedo; Ignacio Pedrosa
Journal:  J Autism Dev Disord       Date:  2019-07

4.  A Qualitative Exploration of the Female Experience of Autism Spectrum Disorder (ASD).

Authors:  Victoria Milner; Hollie McIntosh; Emma Colvert; Francesca Happé
Journal:  J Autism Dev Disord       Date:  2019-06
  4 in total

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