Literature DB >> 29020791

Parents' and young adults' perspectives on transition outcomes for young adults with autism.

Collette Sosnowy1, Chloe Silverman1, Paul Shattuck1.   

Abstract

Existing research shows that young adults with autism spectrum disorder have poorer outcomes than their peers with other developmental disabilities in the key areas of independent living, postsecondary education, and employment. However, we understand little about how young adults with autism and their families understand and value outcomes and whether these indicators match their goals and aspirations. We interviewed parents (n = 21) and young adults with autism spectrum disorder (n = 20) about their experiences with the transition to adulthood to understand what they consider to be desirable outcomes and how they seek to achieve them. Understanding these perspectives will help identify areas of need as well as disconnections between service objectives and the goals of young adults and their families. Participants described outcomes as more complex and nuanced than current conceptions and measures account for. They defined and evaluated outcomes in relation to their or their child's individual abilities, needs, and desires. These findings provide important insight into challenges to and facilitators of desired outcomes, which has implications for programming, service delivery, and policy.

Entities:  

Keywords:  autism; measures; outcomes; parents; quality of life; transition; young adults

Mesh:

Year:  2017        PMID: 29020791     DOI: 10.1177/1362361317699585

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  13 in total

1.  Accelerating research on treatment and services for transition age youth and adults on the autism spectrum.

Authors:  Mary J Baker-Ericzén; Lauren Brookman-Frazee; Edward S Brodkin
Journal:  Autism       Date:  2018-01

2.  Young Adults on the Autism Spectrum and Early Employment-Related Experiences: Aspirations and Obstacles.

Authors:  Connie Anderson; Catherine Butt; Clare Sarsony
Journal:  J Autism Dev Disord       Date:  2021-01

3.  Sex differences in employment and supports for adults with autism spectrum disorder.

Authors:  Julie Lounds Taylor; Leann Smith DaWalt; Alison R Marvin; J Kiely Law; Paul Lipkin
Journal:  Autism       Date:  2019-02-07

4.  Autistic Adolescents' and Their Parents' Visions for the Future: How Aligned are They?

Authors:  Anne V Kirby; Marissa L Diener; Evan E Dean; Amber Nowell Darlington; Alyssa Myers; Jarrett Henderson
Journal:  Autism Adulthood       Date:  2021-09-22

5.  Vocational Rehabilitation Service Utilization and Employment Outcomes Among Secondary Students on the Autism Spectrum.

Authors:  Anne M Roux; Jessica E Rast; Kristy A Anderson; Tamara Garfield; Paul T Shattuck
Journal:  J Autism Dev Disord       Date:  2021-01

6.  How should we support young people with ASD and mental health problems as they navigate the transition to adult life including access to adult healthcare services.

Authors:  Christopher King; Hannah Merrick; Ann Le Couteur
Journal:  Epidemiol Psychiatr Sci       Date:  2020-01-09       Impact factor: 6.892

Review 7.  Services for Adults With Autism Spectrum Disorder: a Systems Perspective.

Authors:  Paul T Shattuck; Tamara Garfield; Anne M Roux; Jessica E Rast; Kristy Anderson; Elizabeth McGhee Hassrick; Alice Kuo
Journal:  Curr Psychiatry Rep       Date:  2020-02-05       Impact factor: 5.285

8.  The Impact of Health and Social Services on the Quality of Life in Families of Adults with Autism Spectrum Disorder (ASD): A Focus Group Study.

Authors:  Cinzia Correale; Marta Borgi; Francesca Cirulli; Fiorenzo Laghi; Barbara Trimarco; Maurizio Ferraro; Aldina Venerosi
Journal:  Brain Sci       Date:  2022-01-28

9.  Transition preparation activities among families of youth on the autism spectrum: Preliminary study using repeated assessments across a school year.

Authors:  Anne V Kirby; Marissa L Diener; Daniel E Adkins; Cheryl Wright
Journal:  PLoS One       Date:  2020-04-16       Impact factor: 3.240

10.  Experiences of autistic and non-autistic individuals participating in a corporate internship scheme.

Authors:  Anna Remington; Brett Heasman; Anna Melissa Romualdez; Elizabeth Pellicano
Journal:  Autism       Date:  2021-06-19
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