Literature DB >> 29019630

Prolonged Hospital Discharge for Children with Technology Dependency: A Source of Health Care Disparities.

Sarah A Sobotka, Rishi K Agrawal, Michael E Msall.   

Abstract

Children with ventilator assistance have been supported in living at home since 1981 when parental advocacy ushered in a change to Medicaid policy. As the population of children who use medical technology such as long-term ventilation increases, we must critically evaluate our systems for preparing families for home life. Discharge delays persist in the modern era because of fragmentation between hospital and home systems. These discharge delays result in children spending time in less developmentally rich environments, further exacerbating the health and development disparities of children with complex disabilities. In this article, we discuss the complication of hospital discharge and how it contributes to health and developmental disparities. We also describe a hospital-to-home transitional care model, which presents a home-like environment to provide developmental support while focusing on parental training, home nursing, and public-funding arrangements. [Pediatr Ann. 2017;46(10):e365-e370.]. Copyright 2017, SLACK Incorporated.

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Year:  2017        PMID: 29019630      PMCID: PMC7234831          DOI: 10.3928/19382359-20170919-01

Source DB:  PubMed          Journal:  Pediatr Ann        ISSN: 0090-4481            Impact factor:   1.132


  20 in total

Review 1.  Long-term home mechanical ventilation in the United States.

Authors:  Angela C King
Journal:  Respir Care       Date:  2012-06       Impact factor: 2.258

2.  Resolution No. 43/112. Question of a convention on the rights of the child, 8 December 1988.

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Journal:  Annu Rev Popul Law       Date:  1988

3.  The reactions of hospitalized children to illness.

Authors:  G E BLOM
Journal:  Pediatrics       Date:  1958-09       Impact factor: 7.124

4.  Patient and parent sleep in a children's hospital.

Authors:  Lisa J Meltzer; Katherine Finn Davis; Jodi A Mindell
Journal:  Pediatr Nurs       Date:  2012 Mar-Apr

5.  Identification of Fail Points for Discharging Pediatric Patients With New Tracheostomy and Ventilator.

Authors:  Sarah A Sobotka; Lindsey P Hird-McCorry; Denise M Goodman
Journal:  Hosp Pediatr       Date:  2016-08-18

6.  Sending children home on tracheostomy dependent ventilation: pitfalls and outcomes.

Authors:  E A Edwards; M O'Toole; C Wallis
Journal:  Arch Dis Child       Date:  2004-03       Impact factor: 3.791

7.  Chronic ventilator need in the community: a 2005 pediatric census of Massachusetts.

Authors:  Robert J Graham; Eric W Fleegler; Walter M Robinson
Journal:  Pediatrics       Date:  2007-05-07       Impact factor: 7.124

8.  Children with new tracheostomies: planning for family education and common impediments to discharge.

Authors:  Jeanine M Graf; Barbara A Montagnino; Remí Hueckel; Mona L McPherson
Journal:  Pediatr Pulmonol       Date:  2008-08

9.  Neuropsychological function in children following admission to paediatric intensive care: a pilot investigation.

Authors:  Sarah Elison; Dan Shears; Simon Nadel; Barbara Sahakian; M Elena Garralda
Journal:  Intensive Care Med       Date:  2008-04-05       Impact factor: 17.440

10.  Developmental needs of infants and toddlers who require lengthy hospitalization.

Authors:  H M Feldman; D L Ploof; D Hofkosh; E L Goehring
Journal:  Am J Dis Child       Date:  1993-02
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  5 in total

1.  Attributable Delay of Discharge for Children with Long-Term Mechanical Ventilation.

Authors:  Sarah A Sobotka; Carolyn Foster; Emma Lynch; Lindsey Hird-McCorry; Denise M Goodman
Journal:  J Pediatr       Date:  2019-05-29       Impact factor: 4.406

Review 2.  A Literature Review of Feeding Disorders in Children with Tracheostomies and Ventilators.

Authors:  Sarah A Sobotka; Sarah Laudon; Arwen J Jackson; Shaunda E Harendt; Christopher D Baker
Journal:  Pediatr Ann       Date:  2022-07-01       Impact factor: 1.523

3.  Initiatives for improving delayed discharge from a hospital setting: a scoping review.

Authors:  Lauren Cadel; Sara J T Guilcher; Kristina Marie Kokorelias; Jason Sutherland; Jon Glasby; Tara Kiran; Kerry Kuluski
Journal:  BMJ Open       Date:  2021-02-11       Impact factor: 2.692

4.  A comparative two-cohort study of pediatric patients with long term stay in ICUs.

Authors:  Julia García Mancebo; Sara de la Mata Navazo; Estíbaliz López-Herce Arteta; Rosario Montero Mateo; Isabel María López Esteban; Adriana Mazzuchelli Domínguez; María Sánchez Doutel; Jesús López-Herce Cid; Rafael González Cortés
Journal:  Sci Rep       Date:  2021-02-25       Impact factor: 4.379

5.  PICU Survivorship: Factors Affecting Feasibility and Cohort Retention in a Long-Term Outcomes Study.

Authors:  Sarah A Sobotka; Emma J Lynch; Ayesha V Dholakia; Anoop Mayampurath; Neethi P Pinto
Journal:  Children (Basel)       Date:  2022-07-13
  5 in total

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