Literature DB >> 29016796

Empowerment of athletes with cardiac disorders: a new paradigm.

Rui Providencia1,2, Carina Teixeira3, Oliver R Segal2, Augustus Ullstein4, Kim Mueser3, Pier D Lambiase2,5.   

Abstract

Athletes with cardiac disorders frequently pose an ethical and medical dilemma to physicians assessing their eligibility to participate in sport. In recent decades, patient empowerment has been gaining increasing recognition in clinical decision-making. Empowerment is a process through which people are involved over the decisions and actions that affect their own lives. In the context of a cardiac disorder, empowerment means giving an athlete the chance to participate in the decision about whether or not to remain active in competition. Three models of treatment decision-making are described in this article, with progressive levels of empowerment: the paternalistic model (the athlete has a passive role), the shared-decision making model (both athlete and physician participate in the decision), and the informed-decision making (the decision is made by the athlete while the role of the physician is solely to provide information). This article critically discusses the issues involved in disqualification of athletes with cardiovascular disorders and suggests possible ways of incorporating patient empowerment in potentially career-ending decisions. The authors propose a model of empowerment, which gives patients the opportunity to choose how much, and if, they would like to be involved in the decision-making process.

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Mesh:

Year:  2018        PMID: 29016796      PMCID: PMC6075459          DOI: 10.1093/europace/eux268

Source DB:  PubMed          Journal:  Europace        ISSN: 1099-5129            Impact factor:   5.214


  38 in total

Review 1.  Empowering community settings: agents of individual development, community betterment, and positive social change.

Authors:  Kenneth I Maton
Journal:  Am J Community Psychol       Date:  2008-03

Review 2.  Sports participation for athletes with implantable cardioverter-defibrillators should be an individualized risk-benefit decision.

Authors:  Rachel Lampert; David Cannom
Journal:  Heart Rhythm       Date:  2008-01-29       Impact factor: 6.343

3.  A novel clinical risk prediction model for sudden cardiac death in hypertrophic cardiomyopathy (HCM risk-SCD).

Authors:  Constantinos O'Mahony; Fatima Jichi; Menelaos Pavlou; Lorenzo Monserrat; Aristides Anastasakis; Claudio Rapezzi; Elena Biagini; Juan Ramon Gimeno; Giuseppe Limongelli; William J McKenna; Rumana Z Omar; Perry M Elliott
Journal:  Eur Heart J       Date:  2013-10-14       Impact factor: 29.983

4.  Outcomes from sudden cardiac arrest in US high schools: a 2-year prospective study from the National Registry for AED Use in Sports.

Authors:  Jonathan A Drezner; Brett G Toresdahl; Ashwin L Rao; Ella Huszti; Kimberly G Harmon
Journal:  Br J Sports Med       Date:  2013-10-11       Impact factor: 13.800

5.  Trends in sudden cardiovascular death in young competitive athletes after implementation of a preparticipation screening program.

Authors:  Domenico Corrado; Cristina Basso; Andrea Pavei; Pierantonio Michieli; Maurizio Schiavon; Gaetano Thiene
Journal:  JAMA       Date:  2006-10-04       Impact factor: 56.272

6.  Empowerment, patient centred care and self-management.

Authors:  Mariastella Pulvirenti; John McMillan; Sharon Lawn
Journal:  Health Expect       Date:  2012-01-02       Impact factor: 3.377

7.  In praise of paradox: a social policy of empowerment over prevention.

Authors:  J Rappaport
Journal:  Am J Community Psychol       Date:  1981-02

8.  Effect of Moderate-Intensity Exercise Training on Peak Oxygen Consumption in Patients With Hypertrophic Cardiomyopathy: A Randomized Clinical Trial.

Authors:  Sara Saberi; Matthew Wheeler; Jennifer Bragg-Gresham; Whitney Hornsby; Prachi P Agarwal; Anil Attili; Maryann Concannon; Annika M Dries; Yael Shmargad; Heidi Salisbury; Suwen Kumar; Jonathan J Herrera; Jonathan Myers; Adam S Helms; Euan A Ashley; Sharlene M Day
Journal:  JAMA       Date:  2017-04-04       Impact factor: 56.272

9.  Competitive Sports Participation in Patients With Catecholaminergic Polymorphic Ventricular Tachycardia: A Single Center's Early Experience.

Authors:  Stuart A Ostby; J Martijn Bos; Heidi J Owen; Philip L Wackel; Bryan C Cannon; Michael J Ackerman
Journal:  JACC Clin Electrophysiol       Date:  2016-06-20

10.  Sports Participation in Genotype Positive Children With Long QT Syndrome.

Authors:  Peter F Aziz; Tammy Sweeten; Ramon L Vogel; William J Bonney; Jacqueline Henderson; Akash R Patel; Maully J Shah
Journal:  JACC Clin Electrophysiol       Date:  2015 Mar-Apr
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  2 in total

Review 1.  Long-QT Syndrome and Competitive Sports.

Authors:  Frédéric Schnell; Nathalie Behar; François Carré
Journal:  Arrhythm Electrophysiol Rev       Date:  2018-08

Review 2.  Cardiopulmonary Resuscitation and Defibrillator Use in Sports.

Authors:  Mafalda Carrington; Rui Providência; C Anwar A Chahal; Flavio D'Ascenzi; Alberto Cipriani; Fabrizio Ricci; Mohammed Y Khanji
Journal:  Front Cardiovasc Med       Date:  2022-02-15
  2 in total

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