Literature DB >> 28979496

Embedding patient and public involvement within research - How to set up a research patient ambassador group within a NHS trust.

Emma Skilton1, Mudassar Aslam1, Joyce Yeung1,2, Fang Gao1,2, Teresa Melody1.   

Abstract

Patient and public involvement in clinical research is vital to ensure the correct research questions are being asked to address patient and public's needs. Patient and public involvement groups can be set up within individual research departments and local NHS trusts to help guide researchers, but there is a lack of guidance on how to develop and implement patient and public involvement groups. In this paper, we discuss the vital role and benefits of patient and public involvement in clinical research. We also describe how a research patient ambassador group called the Clinical Research Ambassador Group was created at the Heart of England NHS Foundation Trust to offer some advice and guidance for researchers and clinicians wishing to form their own group within a NHS trust.

Entities:  

Keywords:  Clinical Research Ambassador Group; INVOLVE; Patient and public involvement; advisory group

Year:  2016        PMID: 28979496      PMCID: PMC5606526          DOI: 10.1177/1751143716644459

Source DB:  PubMed          Journal:  J Intensive Care Soc        ISSN: 1751-1437


  4 in total

Review 1.  Mapping the impact of patient and public involvement on health and social care research: a systematic review.

Authors:  Jo Brett; Sophie Staniszewska; Carole Mockford; Sandra Herron-Marx; John Hughes; Colin Tysall; Rashida Suleman
Journal:  Health Expect       Date:  2012-07-19       Impact factor: 3.377

Review 2.  The impact of patient and public involvement on UK NHS health care: a systematic review.

Authors:  Carole Mockford; Sophie Staniszewska; Frances Griffiths; Sandra Herron-Marx
Journal:  Int J Qual Health Care       Date:  2011-11-22       Impact factor: 2.038

3.  Patients', clinicians' and the research communities' priorities for treatment research: there is an important mismatch.

Authors:  Sally Crowe; Mark Fenton; Matthew Hall; Katherine Cowan; Iain Chalmers
Journal:  Res Involv Engagem       Date:  2015-06-25

4.  How to develop a patient and carer advisory group in stroke care research.

Authors:  Sarah Sims; Sally Brearley; Gillian Hewitt; Nan Greenwood; Fiona Jones; Fiona Ross; Ruth Harris
Journal:  Nurse Res       Date:  2013-01
  4 in total
  2 in total

Review 1.  Patient and Public Involvement in Dermatology Research: A Review.

Authors:  Megan Heague; Chandrima Ray; Joanne Bowers; Jonathan Guckian; Bernd W M Arents; Alison Layton
Journal:  Am J Clin Dermatol       Date:  2022-03-29       Impact factor: 6.233

2.  Global Public Attitudes About Clinical Research and Patient Experiences With Clinical Trials.

Authors:  Annick Anderson; Deborah Borfitz; Kenneth Getz
Journal:  JAMA Netw Open       Date:  2018-10-05
  2 in total

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