Literature DB >> 28977810

European Reference Networks: Share, Care, and Cure-Future or Dream?

Rene Wijnen1, Stefan Michał Anzelewicz2, Claus Petersen3, Piotr Czauderna2.   

Abstract

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Year:  2017        PMID： 28977810     DOI： 10.1055/s-0037-1607057

Source DB:  PubMed          Journal:  Eur J Pediatr Surg        ISSN： 0939-7248            Impact factor:   2.191


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  3 in total

Review 1.  European expert network on rare communicable diseases and other rare diseases linked to mobility and globalisation focused on health care provision (EURaDMoG): a feasibility study.

Authors:  Ana Requena-Méndez; Zeno Bisoffi; Joan-Lluis Vives-Corrons; Joaquim Gascon; Antoni Plasència
Journal:  Orphanet J Rare Dis       Date:  2020-10-16       Impact factor: 4.123

2.  eHealth for patients with rare diseases: the eHealth Working Group of the European Reference Network on Rare Multisystemic Vascular Diseases (VASCERN).

Authors:  Alessia Paglialonga; Raffaella Gaetano; Leema Robert; Marine Hurard; Luisa Maria Botella; Natasha Barr; Guillaume Jondeau; Alessandro Pini
Journal:  Orphanet J Rare Dis       Date:  2021-04-08       Impact factor: 4.123

3.  Boosting care and knowledge about hereditary cancer: European Reference Network on Genetic Tumour Risk Syndromes.

Authors:  Janet R Vos; Lisette Giepmans; Claas Röhl; Nicoline Geverink; Nicoline Hoogerbrugge
Journal:  Fam Cancer       Date:  2019-04       Impact factor: 2.375
  3 in total

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