Literature DB >> 28947115

Contemporary health care for Huntington disease.

Mary C Edmondson1, Lavonne Goodman2.   

Abstract

Providing medical care for people and families affected by Huntington disease (HD) can be a rewarding effort when realistic goals of improved quality of life and optimized functional status are set. Multiple disease symptoms can remit or improve with currently available pharmacologic and behavioral interventions, even though barriers exist that interfere with access to treatment. Connecting expert multidisciplinary teams with community-based care, developing treatment guidelines, and involving the HD family community in quality improvements can achieve an integrated system of health care delivery. Engaging people with HD in high-quality compassionate care will not only improve lives, it will also encourage participation in clinical trials that search for disease-modifying treatments that will reduce or bring the suffering of HD to an end.
Copyright © 2017 Elsevier B.V. All rights reserved.

Entities:  

Keywords:  Huntington disease; care coordination; care delivery; caregiver burden; multidisciplinary care; quality improvement; standards of care

Mesh:

Year:  2017        PMID: 28947115     DOI: 10.1016/B978-0-12-801893-4.00014-6

Source DB:  PubMed          Journal:  Handb Clin Neurol        ISSN: 0072-9752


  2 in total

1.  Assessing the state of care for Huntington disease in the United States: Results from a survey of practices treating Huntington disease patients.

Authors:  Lauren Seeberger; Jody Corey-Bloom; Michael O'Brien; Diana Slowiejko; Danielle Schlang; Marika S Booth; Beth Ann Griffin; Peggy G Chen
Journal:  Clin Park Relat Disord       Date:  2022-09-12

2.  Economic burden of Huntington's disease in Peru.

Authors:  Gustavo Silva-Paredes; Rosa M Urbanos-Garrido; Miguel Inca-Martinez; Danielle Rabinowitz; Mario R Cornejo-Olivas
Journal:  BMC Health Serv Res       Date:  2019-12-30       Impact factor: 2.655

  2 in total

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