OBJECTIVE: The importance of everyday life when managing the burden of treatment is rarely studied. This article explores the burden of treatment among people with multi-morbidity by investigating the tension between everyday life and the health care system. METHOD: This was an ethnographic study using individual interviews and participant-observations. An inductive analytical approach was applied, moving from observations and results to broader generalisations. RESULTS: People with multi-morbidity experience dilemmas related to their individual priorities in everyday life and the management of their treatment burdens. Dilemmas were identified within three domains: family and social life; work life; agendas and set goals in appointments with health professionals. Individual resources and priorities in everyday life play a dominant role in resolving dilemmas and navigating the tension between everyday life and the health care system. DISCUSSION: People with multi-morbidity are seldom supported by health professionals in resolving the dilemmas they must face. This study suggests an increased focus on patient-centredness and argues in favour of planning health care through cooperation between health professionals and people with multi-morbidity in a way that integrates both health and everyday life priorities.
OBJECTIVE: The importance of everyday life when managing the burden of treatment is rarely studied. This article explores the burden of treatment among people with multi-morbidity by investigating the tension between everyday life and the health care system. METHOD: This was an ethnographic study using individual interviews and participant-observations. An inductive analytical approach was applied, moving from observations and results to broader generalisations. RESULTS:People with multi-morbidity experience dilemmas related to their individual priorities in everyday life and the management of their treatment burdens. Dilemmas were identified within three domains: family and social life; work life; agendas and set goals in appointments with health professionals. Individual resources and priorities in everyday life play a dominant role in resolving dilemmas and navigating the tension between everyday life and the health care system. DISCUSSION: People with multi-morbidity are seldom supported by health professionals in resolving the dilemmas they must face. This study suggests an increased focus on patient-centredness and argues in favour of planning health care through cooperation between health professionals and people with multi-morbidity in a way that integrates both health and everyday life priorities.
Authors: David T Eton; Roger T Anderson; Jennifer L St Sauver; Elizabeth A Rogers; Mark Linzer; Minji K Lee Journal: J Multimorb Comorb Date: 2022-02-27
Authors: Eng Sing Lee; Gayathri Muthulingam; Evelyn Ai Ling Chew; Poay Sian Sabrina Lee; Hui Li Koh; Stephanie Xin En Quak; Yew Yoong Ding; Mythily Subramaniam; Janhavi Ajit Vaingankar Journal: J Comorb Date: 2020-12-29
Authors: Ana Isabel González-González; Robin Brünn; Julia Nothacker; Christine Schwarz; Edris Nury; Truc Sophia Dinh; Maria-Sophie Brueckle; Mirjam Dieckelmann; Beate Sigrid Müller; Marjan van den Akker Journal: Int J Environ Res Public Health Date: 2021-12-21 Impact factor: 3.390