Literature DB >> 28905997

Children with neurodevelopmental disorders and disabilities: a population-based study of healthcare service utilization using administrative data.

Rubab G Arim1, Anton R Miller2, Anne Guèvremont1, Lucyna M Lach3, Jamie C Brehaut4, Dafna E Kohen1.   

Abstract

AIM: The aim of this study was to identify children with neurodevelopmental disorders and disabilities (NDD/D) and compare their healthcare service utilization to children without NDD/D using provincial linked administrative data.
METHOD: The sample included children aged 6 to 10 years (n=183 041), who were registered with the British Columbia Medical Services Plan. Diagnostic information was used for the identification and classification of NDD/D in six functional domains. Healthcare service utilization included outcomes based on physician claims, prescription medication use, and hospitalization.
RESULTS: Overall, 8.3% of children were identified with NDD/D. Children with NDD/D had higher healthcare service utilization rates than those without NDD/D. Effect sizes were: very large for the number of days a prescription medication was dispensed; large for the number of prescriptions; medium for the number of physician visits, different specialists visited, number of different prescription medications, and ever hospitalized; and small for the number of laboratory visits, X-ray visits, and number of days hospitalized.
INTERPRETATION: The findings have policy implications for service and resource planning. Given the high use of psychostimulants, specialized services for both NDD/D and psychiatric conditions may be the most needed services for children with NDD/D. Future studies may examine patterns of physician behaviours and costs attributable to healthcare service utilization for children with NDD/D. WHAT THIS PAPER ADDS: Children with neurodevelopmental disorders and disabilities (NDD/D) have higher healthcare service utilization than those without. Based on provincial population-based linked administrative health data, a sizeable number of children are living with NDD/D. Given the high use of psychostimulants, specialized services for children with both NDD/D and psychiatric conditions may be the most needed services for children with NDD/D.
© 2017 Mac Keith Press.

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Year:  2017        PMID: 28905997     DOI: 10.1111/dmcn.13557

Source DB:  PubMed          Journal:  Dev Med Child Neurol        ISSN: 0012-1622            Impact factor:   5.449


  13 in total

1.  Trajectories of poverty and economic hardship among American families supporting a child with a neurodisability.

Authors:  D W Rothwell; G Gariépy; F J Elgar; L M Lach
Journal:  J Intellect Disabil Res       Date:  2019-07-12

Review 2.  Generic preference-based health-related quality of life in children with neurodevelopmental disorders: a scoping review.

Authors:  Ramesh Lamsal; Brittany Finlay; David G T Whitehurst; Jennifer D Zwicker
Journal:  Dev Med Child Neurol       Date:  2019-06-21       Impact factor: 5.449

3.  Health care service for families with children at early risk of developmental delay: an All Our Families cohort study.

Authors:  Matthew J Russell; Shainur Premji; Sheila Mcdonald; Jennifer D Zwicker; Suzanne Tough
Journal:  Dev Med Child Neurol       Date:  2019-08-30       Impact factor: 5.449

4.  Use of family disability service by families with young children with disabilities.

Authors:  Matthew J Russell; Yunqi Zhang; Xinjie Cui; Suzanne Tough; Jennifer D Zwicker
Journal:  Dev Med Child Neurol       Date:  2020-01-31       Impact factor: 5.449

5.  An Integrated Care Strategy for Pre-schoolers with Suspected Developmental Disorders: The Optimus Co-design Project that has Made it to Regular Care.

Authors:  Anna Sarkadi; Anton Dahlberg; Kajsa Leander; Moa Johansson; Johanna Zahlander; Anna Fäldt; Robert S Kristiansson; Kine Johansen
Journal:  Int J Integr Care       Date:  2021-04-15       Impact factor: 5.120

6.  Availability of Services and Caregiver Burden: Supporting Individuals With Neurogenetic Conditions During the COVID-19 Pandemic.

Authors:  Michelle Kowanda; Lindsey Cartner; Catherine Kentros; Alexa R Geltzeiler; Kaitlyn E Singer; W Curtis Weaver; Christopher D Lehman; Simone Smith; Rebecca Sheedy Smith; Lauren Kasparson Walsh; Katharine Diehl; Natalie Nagpal; Elizabeth Brooks; Caroline M Mebane; Ashley L Wilson; Alison R Marvin; L Casey White; J Kiely Law; William Jensen; Amy M Daniels; Jennifer Tjernagel; LeeAnne Green Snyder; Cora M Taylor; Wendy K Chung
Journal:  J Child Neurol       Date:  2021-04-08       Impact factor: 1.987

Review 7.  How Knowledge Mapping Can Bridge the Communication Gap Between Caregivers and Health Professionals Supporting Individuals With Complex Medical Needs: A Study in Fragile X Syndrome.

Authors:  Karen Kelm; Francois V Bolduc
Journal:  Front Psychiatry       Date:  2021-11-24       Impact factor: 4.157

8.  Using the ages and stages questionnaire in the general population as a measure for identifying children not at risk of a neurodevelopmental disorder.

Authors:  Ramesh Lamsal; Daniel J Dutton; Jennifer D Zwicker
Journal:  BMC Pediatr       Date:  2018-04-03       Impact factor: 2.125

9.  Social isolation and exclusion: the parents' experience of caring for children with rare neurodevelopmental disorders.

Authors:  Genevieve Currie; Joanna Szabo
Journal:  Int J Qual Stud Health Well-being       Date:  2020-12

10.  Exome first approach to reduce diagnostic costs and time - retrospective analysis of 111 individuals with rare neurodevelopmental disorders.

Authors:  Skadi Beblo; Bernt Popp; Julia Klau; Rami Abou Jamra; Maximilian Radtke; Henry Oppermann; Johannes R Lemke
Journal:  Eur J Hum Genet       Date:  2021-10-25       Impact factor: 5.351

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