Literature DB >> 28891318

What Would an HIV Cure Mean to You? Qualitative Analysis from a Crowdsourcing Contest in Guangzhou, China.

Alice Zhang1,2, Xin Pan1, Feng Wu1,3, Yang Zhao2, Fengyu Hu1, Linghua Li4, Weiping Cai4, Joseph D Tucker2,5.   

Abstract

Much HIV cure social science research has focused on high-income countries. Local key population perspectives, especially from people living with HIV (PLHIV), are needed in low- and middle-income countries. We organized an open contest soliciting responses from key populations, including PLHIV, about what a cure would mean in their lives. Tailored in-person events and social media were used to engage PLHIV, men who have sex with men (MSM), people who inject drugs, and local residents. We received 471 contributions over 4 months. Our thematic analysis showed that many people perceived that a cure would sterilize HIV and bring about new life for PLHIV. Many individuals believed a cure would decrease PLHIV discrimination and many MSM perceived a cure would decrease MSM discrimination. Some participants noted that a cure could help improve interpersonal relations, particularly with families and partners. Many individuals envisioned HIV cure as a panacea to bring about social stability. Some participants also anticipated changes in attitudes toward sex that may result in increased condomless sex. Our findings suggest a continued need for careful management of patient expectations and community engagement.

Entities:  

Keywords:  China; HIV; crowdsourcing; cure; meaning

Mesh:

Year:  2017        PMID: 28891318      PMCID: PMC5771549          DOI: 10.1089/AID.2017.0188

Source DB:  PubMed          Journal:  AIDS Res Hum Retroviruses        ISSN: 0889-2229            Impact factor:   2.205


  28 in total

1.  Preexposure prophylaxis and predicted condom use among high-risk men who have sex with men.

Authors:  Sarit A Golub; William Kowalczyk; Corina L Weinberger; Jeffrey T Parsons
Journal:  J Acquir Immune Defic Syndr       Date:  2010-08       Impact factor: 3.731

2.  Sexual risk taking among patients on antiretroviral therapy in an urban informal settlement in Kenya: a cross-sectional survey.

Authors:  Anders Ragnarsson; Anna Mia Ekström; Jane Carter; Festus Ilako; Abigail Lukhwaro; Gaetano Marrone; Anna Thorson
Journal:  J Int AIDS Soc       Date:  2011-04-18       Impact factor: 5.396

Review 3.  Risk compensation: the Achilles' heel of innovations in HIV prevention?

Authors:  Michael M Cassell; Daniel T Halperin; James D Shelton; David Stanton
Journal:  BMJ       Date:  2006-03-11

Review 4.  Past, present and future: 30 years of HIV research.

Authors:  Françoise Barré-Sinoussi; Anna Laura Ross; Jean-François Delfraissy
Journal:  Nat Rev Microbiol       Date:  2013-10-28       Impact factor: 60.633

5.  Creative Contributory Contests to Spur Innovation in Sexual Health: 2 Cases and a Guide for Implementation.

Authors:  Ye Zhang; Julie A Kim; Fengying Liu; Lai Sze Tso; Weiming Tang; Chongyi Wei; Barry L Bayus; Joseph D Tucker
Journal:  Sex Transm Dis       Date:  2015-11       Impact factor: 2.830

6.  Experiences and expectations of participants completing an HIV cure focused clinical trial.

Authors:  James H McMahon; Julian H Elliott; Janine Roney; Michelle Hagenauer; Sharon R Lewin
Journal:  AIDS       Date:  2015-01-14       Impact factor: 4.177

7.  HIV cure research in South Africa: a preliminary exploration of stakeholder perspectives.

Authors:  Keymanthri Moodley; Ciara Staunton; Malcolm de Roubaix; Mark Cotton
Journal:  AIDS Care       Date:  2015-11-13

8.  A global survey of HIV-positive people's attitudes towards cure research.

Authors:  R Simmons; M Kall; S Collins; G Cairns; S Taylor; M Nelson; S Fidler; K Porter; J Fox
Journal:  HIV Med       Date:  2016-05-11       Impact factor: 3.180

9.  What motivates participation in HIV cure trials? A call for real-time assessment to improve informed consent.

Authors:  Holly L Peay; Gail E Henderson
Journal:  J Virus Erad       Date:  2015-01-01

10.  No evidence of sexual risk compensation in the iPrEx trial of daily oral HIV preexposure prophylaxis.

Authors:  Julia L Marcus; David V Glidden; Kenneth H Mayer; Albert Y Liu; Susan P Buchbinder; K Rivet Amico; Vanessa McMahan; Esper Georges Kallas; Orlando Montoya-Herrera; Jose Pilotto; Robert M Grant
Journal:  PLoS One       Date:  2013-12-18       Impact factor: 3.240

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  10 in total

Review 1.  Crowdsourcing Methods to Enhance HIV and Sexual Health Services: A Scoping Review and Qualitative Synthesis.

Authors:  Dan Wu; Jason J Ong; Weiming Tang; Tiarney D Ritchwood; Jennifer S Walker; Juliet Iwelunmor; Joseph D Tucker
Journal:  J Acquir Immune Defic Syndr       Date:  2019-12       Impact factor: 3.731

2.  HIV Cure Research Crowdsourcing: An Author Response.

Authors:  Joseph D Tucker; Alice Zhang; Yang Zhao
Journal:  AIDS Res Hum Retroviruses       Date:  2018-01-05       Impact factor: 2.205

3.  A crowdsourced intervention to decrease hepatitis B stigma in men who have sex with men in China: A cohort study.

Authors:  Karen Shen; Nancy S Yang; Wenting Huang; Thomas S Fitzpatrick; Weiming Tang; Yang Zhao; Yehua Wang; Linghua Li; Joseph D Tucker
Journal:  J Viral Hepat       Date:  2019-10-10       Impact factor: 3.728

Review 4.  Key populations and power: people-centred social innovation in Asian HIV services.

Authors:  Fan Yang; Rena Janamnuaysook; Mark A Boyd; Nittaya Phanuphak; Joseph D Tucker
Journal:  Lancet HIV       Date:  2019-12-07       Impact factor: 12.767

5.  Development of a Psychometric Tool to Measure Community Solidarity Among Sexual Minorities: Evidence From a Pay-it-Forward Randomized Controlled Trial.

Authors:  Anne Sung; Tiange P Zhang; Wenting Huang; Weiming Tang; Marcus Alexander; Laura Forastiere; Navin Kumar; Brian J Hall; Yusuf Ransome; Kevin D Dieckhaus; Dan Wu; Joseph D Tucker; Fan Yang
Journal:  Sex Transm Dis       Date:  2022-06-08       Impact factor: 3.868

6.  Expanding community engagement in HIV clinical trials: a pilot study using crowdsourcing.

Authors:  Suzanne Day; Allison Mathews; Meredith Blumberg; Thi Vu; Hailey Mason; Stuart Rennie; JoAnne D Kuruc; Cynthia L Gay; David M Margolis; Joseph D Tucker
Journal:  AIDS       Date:  2020-07-01       Impact factor: 4.177

7.  Awareness of HIV functional cure and willingness in participating in related clinical trials: comparison between antiretroviral naïve and experienced men who have sex with men living with HIV.

Authors:  Tsz Ho Kwan; Chin Pok Chan; Ngai Sze Wong; Shui Shan Lee
Journal:  BMC Infect Dis       Date:  2022-04-15       Impact factor: 3.667

8.  A Crowdsourcing Open Contest to Design a Latino-Specific COVID-19 Campaign: Mixed Methods Analysis.

Authors:  Harita S Shah; Suzanne Dolwick Grieb; Alejandra Flores-Miller; Katherine H Phillips; Kathleen R Page; Ana Cervantes; Cui Yang
Journal:  JMIR Form Res       Date:  2022-05-12

9.  Forming and implementing community advisory boards in low- and middle-income countries: a scoping review.

Authors:  Yang Zhao; Thomas Fitzpatrick; Bin Wan; Suzanne Day; Allison Mathews; Joseph D Tucker
Journal:  BMC Med Ethics       Date:  2019-10-17       Impact factor: 2.652

10.  Crowdsourcing contests to facilitate community engagement in HIV cure research: a qualitative evaluation of facilitators and barriers of participation.

Authors:  Yang Zhao; Suzanne Day; Nancy S Yang; Huanyu Bao; Linghua Li; Allison Mathews; Joseph D Tucker
Journal:  BMC Public Health       Date:  2020-01-15       Impact factor: 3.295

  10 in total

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