Literature DB >> 28883174

A Decentralized IT Architecture for Locating and Negotiating Access to Biobank Samples.

Rumyana Proynova1, Diogo Alexandre1, Martin Lablans1, David Van Enckevort2, Sebastian Mate3, Niina Eklund4, Kaisa Silander4, Michael Hummel5, Petr Holub6, Frank Ückert1.   

Abstract

There is a need among researchers for the easy discoverability of biobank samples. Currently, there is no uniform way for finding samples and negotiate access. Instead, researchers have to communicate with each biobank separately. We present the architecture for the BBMRI-CS IT platform, whose goal is to facilitate sample location and access. We chose a decentral approach, which allows for strong data protection and provides the high flexibility needed in the highly heterogeneous landscape of European biobanks. This is the first implementation of a decentral search in the biobank field. With the addition of a Negotiator component, it also allows for easy communication and a follow-through of the lengthy approval process for accessing samples.

Keywords:  Biological specimen banks; Decentral search; European research infrastructure; Information storage and retrieval

Mesh:

Year:  2017        PMID: 28883174

Source DB:  PubMed          Journal:  Stud Health Technol Inform        ISSN: 0926-9630


  6 in total

Review 1.  [Requirements for a cross-location biobank IT infrastructure : Survey of stakeholder input on the establishment of a biobank network of the German Biobank Alliance (GBA)].

Authors:  C Schüttler; N Buschhüter; C Döllinger; L Ebert; M Hummel; J Linde; H-U Prokosch; R Proynova; M Lablans
Journal:  Pathologe       Date:  2018-07       Impact factor: 1.011

2.  BioSCOOP - Biobank Sample Communication Protocol. New approach for the transfer of information between biobanks.

Authors:  J Jarczak; J Lach; P Borówka; M Gałka; M Bućko; B Marciniak; D Strapagiel
Journal:  Database (Oxford)       Date:  2019-01-01       Impact factor: 3.451

3.  A Federated Online Search Tool for Biospecimens (Sample Locator): Usability Study.

Authors:  Christina Schüttler; Verena Huth; Magdaléna von Jagwitz-Biegnitz; Martin Lablans; Hans-Ulrich Prokosch; Lena Griebel
Journal:  J Med Internet Res       Date:  2020-08-18       Impact factor: 5.428

4.  The Dutch National TissueArchive Portal enables efficient, consistent, and transparent procurement of diagnostic tissue samples for scientific use.

Authors:  Robin Verjans; Annette H Bruggink; Robby Kibbelaar; Jos Bart; Aletta Debernardi; Tieneke B M Schaaij-Visser; Stefan M Willems; Folkert J Van Kemenade
Journal:  Cell Tissue Bank       Date:  2021-08-25       Impact factor: 1.522

5.  Pan-European Data Harmonization for Biobanks in ADOPT BBMRI-ERIC.

Authors:  Sebastian Mate; Marvin Kampf; Wolfgang Rödle; Stefan Kraus; Rumyana Proynova; Kaisa Silander; Lars Ebert; Martin Lablans; Christina Schüttler; Christian Knell; Niina Eklund; Michael Hummel; Petr Holub; Hans-Ulrich Prokosch
Journal:  Appl Clin Inform       Date:  2019-09-11       Impact factor: 2.342

Review 6.  Biobanking for Cancer Biomarker Research: Issues and Solutions.

Authors:  Lise A Matzke; Peter H Watson
Journal:  Biomark Insights       Date:  2020-10-19
  6 in total

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