Traci M Kazmerski1, Gregory S Sawicki2, Elizabeth Miller3, Kelley A Jones4, Kaleab Z Abebe5, Lisa K Tuchman6, Sigrid Ladores7, Ronald C Rubenstein8, Scott D Sagel9, Daniel J Weiner4, Joseph M Pilewski10, David M Orenstein4, Sonya Borrero11. 1. Division of Respiratory Diseases, Department of Medicine, Boston Children's Hospital, Boston, MA, United States; Institute for Healthcare Improvement, Cambridge, MA, United States. Electronic address: traci.kazmerski@childrens.harvard.edu. 2. Division of Respiratory Diseases, Department of Medicine, Boston Children's Hospital, Boston, MA, United States. 3. Children's Hospital of Pittsburgh of UPMC, Department of Pediatrics, University of Pittsburgh School of Medicine, Pittsburgh, PA, United States; Center for Women's Health Research and Innovation (CWHRI), University of Pittsburgh School of Medicine, Pittsburgh, PA, United States. 4. Children's Hospital of Pittsburgh of UPMC, Department of Pediatrics, University of Pittsburgh School of Medicine, Pittsburgh, PA, United States. 5. Department of Medicine, University of Pittsburgh Medical Center, University of Pittsburgh, Pittsburgh, PA, United States; Center for Research on Health Care Data Center, Division of General Internal Medicine, University of Pittsburgh, Pittsburgh, PA, United States. 6. Division of Adolescent and Young Adult Medicine, Children's National Health System, Washington, DC, United States. 7. University of Alabama-Birmingham, School of Nursing, Birmingham, AL, United States. 8. Division of Pulmonary Medicine and Cystic Fibrosis Center, The Children's Hospital of Philadelphia, Department of Pediatrics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, United States. 9. Department of Pediatrics, Children's Hospital Colorado, University of Colorado School of Medicine, Aurora, CO, United States. 10. Department of Medicine, University of Pittsburgh Medical Center, University of Pittsburgh, Pittsburgh, PA, United States. 11. Center for Women's Health Research and Innovation (CWHRI), University of Pittsburgh School of Medicine, Pittsburgh, PA, United States; Department of Medicine, University of Pittsburgh Medical Center, University of Pittsburgh, Pittsburgh, PA, United States; VA Pittsburgh Center for Health Equity Research and Promotion, Pittsburgh, PA, United States.
Abstract
BACKGROUND: This study aimed to describe and compare the sexual and reproductive health (SRH) care utilization among young women with cystic fibrosis (CF) with the general United States (U.S.) population. METHODS: Women with CF ages 15-24years from five geographically diverse U.S. CF centers participated in a survey investigating SRH. Results were summarized and compared to a nationally representative sample of young women aged 15-24 who participated in the U.S. National Survey of Family Growth (NSFG) using logistic regression to adjust for confounders. RESULTS: A total of 188 women with CF (19.7±2.7years) completed the survey; data were compared to 1997 NSFG respondents (19.6±0.10years). Women with CF had lower lifetime rates of ever obtaining a Pap smear or pelvic exam (26% vs. 57%; p<0.001) and similar rates of HPV vaccination (44% vs. 43%; p=0.64) compared to NSFG respondents. Thirty-seven percent of women with CF reported seeking contraception and <10% reported contraceptive counseling, STI testing/counseling, or pregnancy testing in their lifetime. In the prior 12months, 41% of NSFG respondents reported seeking contraception, 24% received contraceptive counseling, 22% STI testing/counseling, and 23% pregnancy testing. A minority of women with CF received or discussed SRH care in the CF setting, although 66% wanted to discuss SRH with their CF team. CONCLUSIONS: Young women with CF report low rates of SRH care utilization and desire SRH discussions in the CF setting. Interventions should target improved SRH care delivery and encourage patient-provider communication around SRH in the CF care setting.
BACKGROUND: This study aimed to describe and compare the sexual and reproductive health (SRH) care utilization among young women with cystic fibrosis (CF) with the general United States (U.S.) population. METHODS:Women with CF ages 15-24years from five geographically diverse U.S. CF centers participated in a survey investigating SRH. Results were summarized and compared to a nationally representative sample of young women aged 15-24 who participated in the U.S. National Survey of Family Growth (NSFG) using logistic regression to adjust for confounders. RESULTS: A total of 188 women with CF (19.7±2.7years) completed the survey; data were compared to 1997 NSFG respondents (19.6±0.10years). Women with CF had lower lifetime rates of ever obtaining a Pap smear or pelvic exam (26% vs. 57%; p<0.001) and similar rates of HPV vaccination (44% vs. 43%; p=0.64) compared to NSFG respondents. Thirty-seven percent of women with CF reported seeking contraception and <10% reported contraceptive counseling, STI testing/counseling, or pregnancy testing in their lifetime. In the prior 12months, 41% of NSFG respondents reported seeking contraception, 24% received contraceptive counseling, 22% STI testing/counseling, and 23% pregnancy testing. A minority of women with CF received or discussed SRH care in the CF setting, although 66% wanted to discuss SRH with their CF team. CONCLUSIONS: Young women with CF report low rates of SRH care utilization and desire SRH discussions in the CF setting. Interventions should target improved SRH care delivery and encourage patient-provider communication around SRH in the CF care setting.
Authors: Traci M Kazmerski; Natalie E West; Raksha Jain; Ahmet Uluer; Anna M Georgiopoulos; Moira L Aitken; Jennifer L Taylor-Cousar Journal: Pediatr Pulmonol Date: 2021-08-18
Authors: Traci M Kazmerski; Elizabeth Miller; Gregory S Sawicki; Phaedra Thomas; Olga Prushinskaya; Eliza Nelson; Kelsey Hill; Anna Miller; S Jean Emans Journal: Patient Date: 2019-04 Impact factor: 3.883
Authors: Natalie E West; Traci M Kazmerski; Jennifer L Taylor-Cousar; Vin Tangpricha; Kelsie Pearson; Moira L Aitken; Raksha Jain Journal: Pediatr Pulmonol Date: 2021-10-08
Authors: Olivia M Stransky; Molly Pam; Sigrid L Ladores; Mehret Birru Talabi; Sonya Borrero; Emily M Godfrey; Andrea H Roe; Gregory S Sawicki; Lisa C Zuckerwise; Sheila Mody; Laura Mentch; Ashley Deal; Raelynn O'Leary; Jennifer L Taylor-Cousar; Raksha Jain; Traci M Kazmerski Journal: J Patient Exp Date: 2022-02-01