Literature DB >> 28847909

Considerations and Challenges in Selecting Patient-Reported Outcome Measures for Clinical Trials in Nephrology.

Angela Ju1,2, Allison Tong3,4.   

Abstract

Entities:  

Keywords:  Humans; Outcome Assessment (Health Care); Patient Reported Outcome Measures; nephrology; patient-centered care; quality of life; symptoms

Mesh：

Year:  2017        PMID： 28847909      PMCID： PMC5672975          DOI： 10.2215/CJN.06300617

Source DB:  PubMed          Journal:  Clin J Am Soc Nephrol        ISSN： 1555-9041            Impact factor:   8.237


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  13 in total

1.  The idolatry of the surrogate.

Authors:  John S Yudkin; Kasia J Lipska; Victor M Montori
Journal:  BMJ       Date:  2011-12-28

2.  Design and rationale of health-related quality of life and patient-reported outcomes assessment in the Frequent Hemodialysis Network trials.

Authors:  Manisha Jhamb; Manjula K Tamura; Jennifer Gassman; Amit X Garg; Robert M Lindsay; Rita S Suri; George Ting; Fredric O Finkelstein; Scott Beach; Paul L Kimmel; Mark Unruh
Journal:  Blood Purif       Date:  2011-01-10       Impact factor: 2.614

3.  Reporting of patient-reported outcomes in randomized trials: the CONSORT PRO extension.

Authors:  Melanie Calvert; Jane Blazeby; Douglas G Altman; Dennis A Revicki; David Moher; Michael D Brundage
Journal:  JAMA       Date:  2013-02-27       Impact factor: 56.272

Review 4.  The Consistency and Reporting of Quality-of-Life Outcomes in Trials of Immunosuppressive Agents in Kidney Transplantation: A Systematic Review and Meta-analysis.

Authors:  Martin Howell; Germaine Wong; Robin M Turner; Ho Teck Tan; Allison Tong; Jonathan C Craig; Kirsten Howard
Journal:  Am J Kidney Dis       Date:  2015-12-24       Impact factor: 8.860

5.  Why does quality of life remain an under-investigated issue in chronic kidney disease and why is it rarely set as an outcome measure in trials in this population?

Authors:  Kelly Chong; Mark Unruh
Journal:  Nephrol Dial Transplant       Date:  2017-04-01       Impact factor: 5.992

6.  The COSMIN checklist for evaluating the methodological quality of studies on measurement properties: a clarification of its content.

Authors:  Lidwine B Mokkink; Caroline B Terwee; Dirk L Knol; Paul W Stratford; Jordi Alonso; Donald L Patrick; Lex M Bouter; Henrica Cw de Vet
Journal:  BMC Med Res Methodol       Date:  2010-03-18       Impact factor: 4.615

Review 7.  Patient-Reported Outcomes in Glomerular Disease.

Authors:  David T Selewski; Aliza Thompson; Sarrit Kovacs; Elektra J Papadopoulos; Noelle E Carlozzi; Howard Trachtman; Jonathan P Troost; Peter A Merkel; Debbie S Gipson
Journal:  Clin J Am Soc Nephrol       Date:  2016-06-03       Impact factor: 8.237

8.  How to increase value and reduce waste when research priorities are set.

Authors:  Iain Chalmers; Michael B Bracken; Ben Djulbegovic; Silvio Garattini; Jonathan Grant; A Metin Gülmezoglu; David W Howells; John P A Ioannidis; Sandy Oliver
Journal:  Lancet       Date:  2014-01-08       Impact factor: 79.321

9.  Patient-reported outcome and quality of life instruments database (PROQOLID): frequently asked questions.

Authors:  Marie-Pierre Emery; Laure-Lou Perrier; Catherine Acquadro
Journal:  Health Qual Life Outcomes       Date:  2005-03-08       Impact factor: 3.186

10.  How to select outcome measurement instruments for outcomes included in a "Core Outcome Set" - a practical guideline.

Authors:  Cecilia A C Prinsen; Sunita Vohra; Michael R Rose; Maarten Boers; Peter Tugwell; Mike Clarke; Paula R Williamson; Caroline B Terwee
Journal:  Trials       Date:  2016-09-13       Impact factor: 2.279
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  7 in total

1.  Introduction to Patient-Reported Outcomes Perspectives Series.

Authors:  Manjula Kurella Tamura
Journal:  Clin J Am Soc Nephrol       Date:  2017-08-28       Impact factor: 8.237

2.  Patient-Reported Outcomes as Endpoints in Clinical Trials of Kidney Transplantation Interventions.

Authors:  Allison Tong; Rainer Oberbauer; Maria Irene Bellini; Klemens Budde; Fergus J Caskey; Fabienne Dobbels; Liset Pengel; Lionel Rostaing; Stefan Schneeberger; Maarten Naesens
Journal:  Transpl Int       Date:  2022-05-20       Impact factor: 3.842

Review 3.  Patient-Reported Outcome Measures for Adults With Kidney Disease: Current Measures, Ongoing Initiatives, and Future Opportunities for Incorporation Into Patient-Centered Kidney Care.

Authors:  Devika Nair; F Perry Wilson
Journal:  Am J Kidney Dis       Date:  2019-09-03       Impact factor: 8.860

4.  Clinicians' and researchers' perspectives on establishing and implementing core outcomes in haemodialysis: semistructured interview study.

Authors:  Allison Tong; Sally Crowe; John S Gill; Tess Harris; Brenda R Hemmelgarn; Braden Manns; Roberto Pecoits-Filho; Peter Tugwell; Wim van Biesen; Angela Yee Moon Wang; David C Wheeler; Wolfgang C Winkelmayer; Talia Gutman; Angela Ju; Emma O'Lone; Benedicte Sautenet; Andrea Viecelli; Jonathan C Craig
Journal:  BMJ Open       Date:  2018-04-20       Impact factor: 2.692

5.  A patient-reported outcome measure for patients with pituitary adenoma undergoing transsphenoidal surgery.

Authors:  Stephanie E Baldeweg; Hani Joseph Marcus; Elika Karvandi; John Gerrard Hanrahan; Danyal Zaman Khan; Pierre-Marc Boloux; Fion Bremner; Ivan Cabrilo; Neil Dorward; Joan Grieve; Sue Jackson; Glenda Jimenez; Inma Serrano; Victoria Anne Nowak; Angelos Kolias
Journal:  Pituitary       Date:  2022-07-15       Impact factor: 3.599

6.  Patient-reported outcome measures for life participation in peritoneal dialysis: a systematic review.

Authors:  Karine E Manera; Angela Ju; Amanda Baumgart; Elyssa Hannan; Wenjing Qiao; Martin Howell; Melissa Nataatmadja; Martin Wilkie; Fiona Loud; Daniel Schwartz; Helen Hurst; Sarbjit Vanita Jassal; Ana Figueiredo; Rajnish Mehrotra; Jenny Shen; Rachael L Morton; Thyago Moraes; Rachael Walker; Catherine Cheung; Janine F Farragher; Jonathan Craig; David W Johnson; Allison Tong
Journal:  Nephrol Dial Transplant       Date:  2021-04-26       Impact factor: 5.992

7.  Potential Role of Psychosocial Factors on Health-Related Quality of Life in Hemodialysis Patients.

Authors:  Sung Woo Lee
Journal:  J Korean Med Sci       Date:  2018-04-02       Impact factor: 5.354
  7 in total

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