Literature DB >> 28847208

Gap analysis of service needs for adults with neurodevelopmental disorders.

Shanna L Burke1, Eric Wagner1, Heather Marolda1, Jordan E Quintana1, Marlaina Maddux1.   

Abstract

In Florida, the Agency for Persons with Disabilities provides waivers for adults with the following types of disabilities: intellectual disability, autism spectrum disorder, cerebral palsy, spina bifida, Down syndrome, and Prader-Willi syndrome. This review examined the peer-reviewed literature to indicate and assess the common needs for individuals with intellectual and developmental disabilities. Current models of service delivery, the efficacy of these services, and remaining gaps in the need fulfillment of individuals within the six diagnostic categorizations of interest were examined. Severity level within each diagnostic category was plotted on a matrix according to whether the needs of individuals were minimal, moderate, severe, or universal. The study found that sexual health education, socialization, and adult-focused medical care are universal needs among the six conditions. The study indicates that health-care professionals must work toward addressing the many unmet needs in comprehensive life span care services for adult individuals with neurodevelopmental disorders.

Entities:  

Keywords:  Prader–Willi syndrome; autism spectrum disorders; cerebral palsy; developmental disability; down syndrome; intellectual disability; spina bifida

Mesh:

Year:  2017        PMID: 28847208     DOI: 10.1177/1744629517726209

Source DB:  PubMed          Journal:  J Intellect Disabil        ISSN: 1744-6295


  3 in total

1.  Incidence Rate of Advanced Chronic Kidney Disease Among Privately Insured Adults with Neurodevelopmental Disabilities.

Authors:  Daniel G Whitney; Mary Schmidt; Sarah Bell; Hal Morgenstern; Richard A Hirth
Journal:  Clin Epidemiol       Date:  2020-02-27       Impact factor: 4.790

Review 2.  Psychological Interventions for Individuals With Acquired Brain Injury, Cerebral Palsy, and Spina Bifida: A Scoping Review.

Authors:  Morgan Jefferies; Taylor Peart; Laure Perrier; Andrea Lauzon; Sarah Munce
Journal:  Front Pediatr       Date:  2022-03-21       Impact factor: 3.418

3.  Sexual Knowledge, Experiences, and Pragmatic Language in Adults With and Without Autism: Implications for Sex Education.

Authors:  Brooke H Kohn; Paige Vidal; Rachael Chiao; David W Pantalone; Susan Faja
Journal:  J Autism Dev Disord       Date:  2022-08-03
  3 in total

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