Literature DB >> 28836474

Positioning Children's Voice in Clinical Trials Research: A New Model for Planning, Collaboration, and Reflection.

Amanda Lees1, Jane Payler2, Claire Ballinger3, Penny Lawrence4, Saul N Faust3, Geoffrey Meads1.   

Abstract

Following the United Nations Convention on the Rights of the Child, there has been considerable growth in research with children about health and services that affect them. Creative methods to engage with children have also been developed. One area where progress has been slower is the inclusion of children's perspectives in qualitative research in the context of clinical trials or feasibility studies. Addressing this gap, this article discusses experiences of, and reflections on, the process of researching children's views as part of a clinical feasibility study. The article considers what worked well and highlights remaining dilemmas. A new continuum of children's engagement in research is presented, designed to assist researchers to make explicit the contingent demands on their research, and to suggest a range of techniques from within the broader fields of health, childhood studies, and education research that could be used to forward qualitative research in clinical contexts.

Entities:  

Keywords:  United Kingdom; children; illness and disease; lived experience; methodology; qualitative; research design; semi-structured interviews

Mesh:

Year:  2017        PMID: 28836474     DOI: 10.1177/1049732317726760

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  3 in total

1.  Different corticosteroid induction regimens in children and young people with juvenile idiopathic arthritis: the SIRJIA mixed-methods feasibility study.

Authors:  Ashley P Jones; Dannii Clayton; Gloria Nkhoma; Frances C Sherratt; Matthew Peak; Simon R Stones; Louise Roper; Bridget Young; Flora McErlane; Tracy Moitt; Athimalaipet V Ramanan; Helen E Foster; Paula R Williamson; Samundeeswari Deepak; Michael W Beresford; Eileen M Baildam
Journal:  Health Technol Assess       Date:  2020-07       Impact factor: 4.014

2.  Treatment preference and recruitment to pediatric RCTs: A systematic review.

Authors:  L Beasant; A Brigden; R M Parslow; H Apperley; T Keep; A Northam; C Wray; H King; R Langdon; N Mills; B Young; E Crawley
Journal:  Contemp Clin Trials Commun       Date:  2019-02-19

3.  Factors contributing to fidelity in a pilot trial of individualized resistant starches for pediatric inflammatory bowel disease: a fidelity study protocol.

Authors:  Gisell Castillo; David R Mack; Manoj M Lalu; Ruth Singleton; Dean A Fergusson; Alain Stintzi; Megan Harrison; Justin Presseau
Journal:  Pilot Feasibility Stud       Date:  2021-03-19
  3 in total

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