Literature DB >> 28830079

A Pragmatic Approach for Reproducible Research With Sensitive Data.

Bryan E Shepherd, Meridith Blevins Peratikos, Peter F Rebeiro, Stephany N Duda, Catherine C McGowan.   

Abstract

Reproducible research is important for assessing the integrity of findings and disseminating methods, but it requires making original study data sets publicly available. This requirement is difficult to meet in settings with sensitive data, which can mean that resulting studies are not reproducible. For studies in which data cannot be shared, we propose a pragmatic approach to make research quasi-reproducible. On a publicly available website without restriction, researchers should post 1) analysis code used in the published study, 2) simulated data, and 3) results obtained by applying the analysis code used in the published study to the simulated data. Although it is not a perfect solution, such an approach makes analyses transparent for critical evaluation and dissemination and is therefore a significant improvement over current practice.
© The Author(s) 2017. Published by Oxford University Press on behalf of the Johns Hopkins Bloomberg School of Public Health. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

Keywords:  HIV; de-identification; observational data; reproducible research

Mesh:

Year:  2017        PMID: 28830079      PMCID: PMC5860260          DOI: 10.1093/aje/kwx066

Source DB:  PubMed          Journal:  Am J Epidemiol        ISSN: 0002-9262            Impact factor:   4.897


  20 in total

1.  Research integrity: Don't let transparency damage science.

Authors:  Stephan Lewandowsky; Dorothy Bishop
Journal:  Nature       Date:  2016-01-28       Impact factor: 49.962

2.  Data Sharing.

Authors:  Dan L Longo; Jeffrey M Drazen
Journal:  N Engl J Med       Date:  2016-01-21       Impact factor: 91.245

3.  Cohort profile: the North American AIDS Cohort Collaboration on Research and Design (NA-ACCORD).

Authors:  Stephen J Gange; Mari M Kitahata; Michael S Saag; David R Bangsberg; Ronald J Bosch; John T Brooks; Liviana Calzavara; Steven G Deeks; Joseph J Eron; Kelly A Gebo; M John Gill; David W Haas; Robert S Hogg; Michael A Horberg; Lisa P Jacobson; Amy C Justice; Gregory D Kirk; Marina B Klein; Jeffrey N Martin; Rosemary G McKaig; Benigno Rodriguez; Sean B Rourke; Timothy R Sterling; Aimee M Freeman; Richard D Moore
Journal:  Int J Epidemiol       Date:  2007-01-08       Impact factor: 7.196

Review 4.  Reproducible epidemiologic research.

Authors:  Roger D Peng; Francesca Dominici; Scott L Zeger
Journal:  Am J Epidemiol       Date:  2006-03-01       Impact factor: 4.897

5.  Reproducible research and Biostatistics.

Authors:  Roger D Peng
Journal:  Biostatistics       Date:  2009-07       Impact factor: 5.899

Review 6.  Cohort Profile: Caribbean, Central and South America Network for HIV research (CCASAnet) collaboration within the International Epidemiologic Databases to Evaluate AIDS (IeDEA) programme.

Authors:  Catherine C McGowan; Pedro Cahn; Eduardo Gotuzzo; Denis Padgett; Jean W Pape; Marcelo Wolff; Mauro Schechter; Daniel R Masys
Journal:  Int J Epidemiol       Date:  2007-09-10       Impact factor: 7.196

7.  Data Sharing and Inductive Learning--Toward Healthy Birth, Growth, and Development.

Authors:  N L'ntshotsholé Jumbe; Jeffrey C Murray; Steven Kern
Journal:  N Engl J Med       Date:  2016-05-11       Impact factor: 91.245

8.  A systematic review of re-identification attacks on health data.

Authors:  Khaled El Emam; Elizabeth Jonker; Luk Arbuckle; Bradley Malin
Journal:  PLoS One       Date:  2011-12-02       Impact factor: 3.240

9.  Mortality and loss to follow-up among HIV-infected persons on long-term antiretroviral therapy in Latin America and the Caribbean.

Authors:  Gabriela Carriquiry; Valeria Fink; John Robert Koethe; Mark Joseph Giganti; Karu Jayathilake; Meridith Blevins; Pedro Cahn; Beatriz Grinsztejn; Marcelo Wolff; Jean William Pape; Denis Padgett; Juan Sierra Madero; Eduardo Gotuzzo; Catherine Carey McGowan; Bryan Earl Shepherd
Journal:  J Int AIDS Soc       Date:  2015-07-10       Impact factor: 5.396

10.  Sharing individual level data from observational studies and clinical trials: a perspective from NHLBI.

Authors:  Sean A Coady; Elizabeth Wagner
Journal:  Trials       Date:  2013-07-09       Impact factor: 2.279

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  4 in total

Review 1.  Resource Sharing to Improve Research Quality.

Authors:  Ghassan B Hamra; Neal D Goldstein; Sam Harper
Journal:  J Am Heart Assoc       Date:  2019-07-31       Impact factor: 5.501

2.  Use of reproducible research practices in public health: A survey of public health analysts.

Authors:  Jenine K Harris; Kimberly J Johnson; Bobbi J Carothers; Todd B Combs; Douglas A Luke; Xiaoyan Wang
Journal:  PLoS One       Date:  2018-09-12       Impact factor: 3.240

3.  Real-world reproducibility study characterizing patients newly diagnosed with multiple myeloma using Clinical Practice Research Datalink, a UK-based electronic health records database.

Authors:  Anouchka Seesaghur; Natalia Petruski-Ivleva; Victoria Banks; Jocelyn Ruoyi Wang; Pattra Mattox; Edwin Hoeben; Joe Maskell; David Neasham; Shannon L Reynolds; George Kafatos
Journal:  Pharmacoepidemiol Drug Saf       Date:  2020-11-21       Impact factor: 2.890

Review 4.  Data sharing and privacy issues in neuroimaging research: Opportunities, obstacles, challenges, and monsters under the bed.

Authors:  Tonya White; Elisabet Blok; Vince D Calhoun
Journal:  Hum Brain Mapp       Date:  2020-07-04       Impact factor: 5.038

  4 in total

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