Ashley C Rhodes1, Brittney Murray2, Crystal Tichnell2, Cynthia A James2, Hugh Calkins2, Samuel F Sears3. 1. Department of Psychology, East Carolina University, Greenville, USA. 2. Department of Medicine, Johns Hopkins University, Baltimore, USA. 3. Department of Psychology, East Carolina University, Greenville, USA; Department of Cardiovascular Sciences, East Carolina University, Greenville, USA. Electronic address: searss@ecu.edu.
Abstract
BACKGROUND: Arrhythmogenic right ventricular cardiomyopathy (ARVC) patients face many medical and psychosocial challenges. However, the quality of life (QOL) outcomes of these patients remains largely unexplored. METHODS: 159 ARVC patients completed a psychosocial survey including the Short Form Health Survey, Florida Shock Anxiety Scale, and Florida Patient Acceptance Survey. These cross-sectional data were used to examine the general and device-specific QOL of these patients compared to normative samples, and to determine the impact of age, shock and sex on these outcome measures. RESULTS: ARVC patients reported lower physical and mental QOL compared to a normative U.S sample. Compared to an implantable cardioverter defibrillator (ICD) sample, they reported higher mental and physical QOL. Compared to a hypertrophic cardiomyopathy sample, they reported lower physical but higher mental QOL. ARVC patients aged 18-35 reported significantly lower mental QOL than older patients. Male patients with no implantable defibrillator shock history reported significantly higher mental QOL scores than those with shock history. Shock anxiety scores were significantly higher among individuals who had experienced at least one shock. Female ARVC patients reported significantly higher shock anxiety and lower mental QOL compared to male patients. CONCLUSION: ARVC patients report lower mental and physical QOL than a U.S. normative sample, but report mostly superior QOL compared to relevant cardiac samples. Younger ARVC patients, female patients, and those who have experienced at least one device shock are at risk for psychosocial difficulties, including poorer QOL outcomes.
BACKGROUND:Arrhythmogenic right ventricular cardiomyopathy (ARVC) patients face many medical and psychosocial challenges. However, the quality of life (QOL) outcomes of these patients remains largely unexplored. METHODS: 159 ARVC patients completed a psychosocial survey including the Short Form Health Survey, Florida Shock Anxiety Scale, and Florida Patient Acceptance Survey. These cross-sectional data were used to examine the general and device-specific QOL of these patients compared to normative samples, and to determine the impact of age, shock and sex on these outcome measures. RESULTS: ARVC patients reported lower physical and mental QOL compared to a normative U.S sample. Compared to an implantable cardioverter defibrillator (ICD) sample, they reported higher mental and physical QOL. Compared to a hypertrophic cardiomyopathy sample, they reported lower physical but higher mental QOL. ARVC patients aged 18-35 reported significantly lower mental QOL than older patients. Male patients with no implantable defibrillator shock history reported significantly higher mental QOL scores than those with shock history. Shock anxiety scores were significantly higher among individuals who had experienced at least one shock. Female ARVC patients reported significantly higher shock anxiety and lower mental QOL compared to male patients. CONCLUSION: ARVC patients report lower mental and physical QOL than a U.S. normative sample, but report mostly superior QOL compared to relevant cardiac samples. Younger ARVC patients, female patients, and those who have experienced at least one device shock are at risk for psychosocial difficulties, including poorer QOL outcomes.
Authors: Lieke M van den Heuvel; Tanya Sarina; Joanna Sweeting; Laura Yeates; Kezia Bates; Catherine Spinks; Catherine O'Donnell; Samuel F Sears; Kevin McGeechan; Christopher Semsarian; Jodie Ingles Journal: Heart Rhythm O2 Date: 2022-02-08
Authors: Pascal Amedro; Oscar Werner; Hamouda Abassi; Aymeric Boisson; Luc Souilla; Sophie Guillaumont; Johanna Calderon; Anne Requirand; Marie Vincenti; Victor Pommier; Stefan Matecki; Gregoire De La Villeon; Kathleen Lavastre; Alain Lacampagne; Marie-Christine Picot; Constance Beyler; Christophe Delclaux; Yves Dulac; Aitor Guitarte; Philippe Charron; Isabelle Denjoy-Urbain; Vincent Probst; Alban-Elouen Baruteau; Philippe Chevalier; Sylvie Di Filippo; Jean-Benoit Thambo; Damien Bonnet; Jean-Luc Pasquie Journal: Health Qual Life Outcomes Date: 2021-07-28 Impact factor: 3.186