Literature DB >> 28800998

International Children's Palliative Care Network: A Global Action Network for Children With Life-Limiting Conditions.

Joan Marston1, Sue Boucher2, Julia Downing3.   

Abstract

The International Children's Palliative Care Network (ICPCN) is a global network of individuals and organizations working together to reach the estimated 21 million children with life-limiting conditions and life-threatening illnesses. The drive to establish the ICPCN was born from the recognition of the gaps in service provision for children's palliative care and the need to collaborate, network, and share resources. Established in 2005 during a meeting in Seoul, South Korea, the ICPCN has developed over the years into an established network with a global membership. The history of the organization is described, including some of the key events since its inception. Working in collaboration with others, ICPCN has five key focus areas: Communication; Advocacy; Research; Education; and Strategic development, and is the only international charity working globally for the rights of children with palliative care needs. Activities in these areas are discussed, along with the inter-connection between the five areas. Without the ICPCN, palliative care for children would not have developed as far as it has over the years and the organization is committed to ongoing work in this area until all children requiring palliative care have access to quality services, wherever they live around the world.
Copyright © 2017 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Pediatric; children; global; international; network; palliative care

Mesh:

Year:  2017        PMID: 28800998     DOI: 10.1016/j.jpainsymman.2017.03.024

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   3.612


  4 in total

Review 1.  Adding Life to Their Years: The Current State of Pediatric Palliative Care in CKD.

Authors:  Taylor R House; Aaron Wightman
Journal:  Kidney360       Date:  2021-04-07

2.  Inspiration, innovation and integration: highlights from the third ICPCN conference on children's palliative care, 30 May to 2 June 2018, Durban, South Africa.

Authors:  Julia Downing; Sue Boucher; Julia Ambler; Tracey Brand; Zodwa Sithole; Busi Nkosi; Michelle Meiring; Elizabeth Gwyther; Lorna Sithole; Barbara Steel; Alex Daniels
Journal:  Ecancermedicalscience       Date:  2018-09-11

3.  Focuses and trends of the studies on pediatric palliative care:A bibliometric analysis from 2004 to 2018.

Authors:  Miao Zhang; Xiaohan Li
Journal:  Int J Nurs Sci       Date:  2020-11-30

Review 4.  Quality Indicators in Pediatric Palliative Care: Considerations for Latin America.

Authors:  Gregorio Zuniga-Villanueva; Jorge Alberto Ramos-Guerrero; Monica Osio-Saldaña; Jessica A Casas; Joan Marston; Regina Okhuysen-Cawley
Journal:  Children (Basel)       Date:  2021-03-23
  4 in total

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