Literature DB >> 28797217

Maternal Perspectives of Well Siblings' Adjustment to Family Life With a Technology-Dependent Child.

Valerie Boebel Toly1, Julia E Blanchette1, Shannon Sikorski1,2, Carol M Musil1, Arwa Al-Hamed1,3.   

Abstract

Technology-dependent (TD) children require complex care and are dependent on medical technology. Approximately 75% of families, in the United States, who are caring for a TD child, also care for a well child. Well siblings are likely to be affected by the experience of living with a TD sibling as the process of family normalization is described as a family affair. The experiences of well siblings are not well described. The purpose of this qualitative analysis was to describe the experiences of well siblings who are living in a family with a TD child. Mothers were interviewed about the experiences of their well children and were digitally audio recorded. The interviews were transcribed, and content analysis was conducted. Content analysis from the interviews revealed the major themes of well sibling adjustment within the family unit, upside (altruistic, prosocial behaviors) and downside (negative internal and external processing behaviors). These results can be applied to advance the delivery of family nursing care offered to these families.

Entities:  

Keywords:  childbearing/child-rearing families; chronic illness; mother’s perspectives; qualitative research; technology-dependent child; well siblings

Mesh:

Year:  2017        PMID: 28797217     DOI: 10.1177/1074840717721705

Source DB:  PubMed          Journal:  J Fam Nurs        ISSN: 1074-8407            Impact factor:   3.818


  4 in total

Review 1.  Children's complex care needs: a systematic concept analysis of multidisciplinary language.

Authors:  Maria Brenner; Claire Kidston; Carol Hilliard; Imelda Coyne; Jessica Eustace-Cook; Carmel Doyle; Thelma Begley; Michael J Barrett
Journal:  Eur J Pediatr       Date:  2018-08-08       Impact factor: 3.183

2.  Mothers caring for technology-dependent children at home: What is most helpful and least helpful?

Authors:  Valerie Boebel Toly; Julia E Blanchette; Carol M Musil
Journal:  Appl Nurs Res       Date:  2019-02-08       Impact factor: 2.257

Review 3.  A systematic concept analysis of 'technology dependent': challenging the terminology.

Authors:  Maria Brenner; Denise Alexander; Mary Brigid Quirke; Jessica Eustace-Cook; Piet Leroy; Jay Berry; Martina Healy; Carmel Doyle; Kate Masterson
Journal:  Eur J Pediatr       Date:  2020-07-24       Impact factor: 3.183

4.  Well siblings' experiences of living with a child following a traumatic brain injury: a systematic review protocol.

Authors:  Katie Hill; Maria Brenner
Journal:  Syst Rev       Date:  2019-04-02
  4 in total

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