Literature DB >> 28766082

Quality of life among German parents of children with cystic fibrosis: the effects of being a single caregiver.

Astrid Wallenwein1, Mona Schwarz2, Lutz Goldbeck3.   

Abstract

PURPOSE: Quality of life (QoL) has not been studied up to now in single parents of children with cystic fibrosis (CF). We hypothesized lower QoL compared to parents living together with a partner. We explored whether single parents benefit in a comparable manner from a family-oriented inpatient rehabilitation (FOR) program provided in Germany.
METHODS: 260 parents of a child with CF (0-17 years), 40 of them single parents, were included. Their QoL was compared to partnered parents using Student's t test for independent samples. The positive impact of the FOR program on parents' QoL was examined in a subgroup of n = 56 parents using a 2 × 2 analysis of variance with repeated measures on discharge and 6 months later.
RESULTS: Single parents reported significantly lower QoL (M = 54.89; SD = 12.44) than partnered parents (M = 61.55; SD = 15.43; t(258) = -2.581; p = .010). Age of the child or employment status did not impact that difference. In the short term they benefit less from a FOR program than partnered parents (group × time effect: F(1) = 4.832; p = .032), but this was no longer the case at the 6-month follow-up (group × time effect: F(1) = 1.443; p = .235).
CONCLUSIONS: Single parents are at risk of lower QoL. CF care teams should help these parents in particular when it comes to accessing social support.

Entities:  

Keywords:  Cystic fibrosis; Parental quality of life; Single parents; Single-parent families

Mesh:

Year:  2017        PMID: 28766082     DOI: 10.1007/s11136-017-1662-x

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  24 in total

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Authors:  Bonnie L Janzen; Kathryn Green; Nazeem Muhajarine
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Authors:  S Sperlich; S Arnhold-Kerri; S Geyer
Journal:  Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz       Date:  2011-06       Impact factor: 1.513

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Authors:  Anita Skok; David Harvey; Dinah Reddihough
Journal:  J Intellect Dev Disabil       Date:  2006-03

6.  Fear of disease progression questionnaire for parents: Psychometric properties based on a sample of caregivers of children and adolescents with cystic fibrosis.

Authors:  Astrid Fidika; Marion Herle; Peter Herschbach; Lutz Goldbeck
Journal:  J Psychosom Res       Date:  2015-02-28       Impact factor: 3.006

7.  Anxiety, depression, and life satisfaction in parents caring for children with cystic fibrosis.

Authors:  Tanja Besier; Anja Born; Gerhard Henrich; Andreas Hinz; Alexandra L Quittner; Lutz Goldbeck
Journal:  Pediatr Pulmonol       Date:  2011-03-07

8.  Effectiveness of a family-oriented rehabilitation program on the quality of life of parents of chronically ill children.

Authors:  C A West; T Besier; T Borth-Bruhns; L Goldbeck
Journal:  Klin Padiatr       Date:  2009-07-23       Impact factor: 1.349

9.  Age differences in parent and child responsibilities for management of cystic fibrosis and insulin-dependent diabetes mellitus.

Authors:  D Drotar; C Ievers
Journal:  J Dev Behav Pediatr       Date:  1994-08       Impact factor: 2.225

10.  A predictive model of Health Related Quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system.

Authors:  Janneke Hatzmann; Heleen Maurice-Stam; Hugo S A Heymans; Martha A Grootenhuis
Journal:  Health Qual Life Outcomes       Date:  2009-07-28       Impact factor: 3.186

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  1 in total

1.  Caregiver burden in cystic fibrosis: a systematic literature review.

Authors:  Conor Daly; Philip Ruane; Karl O'Reilly; Louise Longworth; Gabriela Vega-Hernandez
Journal:  Ther Adv Respir Dis       Date:  2022 Jan-Dec       Impact factor: 4.031

  1 in total

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