Literature DB >> 28754048

Barriers to palliative care for advanced dementia: a scoping review.

Meira Erel1, Esther-Lee Marcus2, Freda Dekeyser-Ganz3.   

Abstract

People with dementia often fail to receive palliative care, despite increased recognition of their need and eligibility for such care. The aims of this study were to assess the barriers associated with a lack of implementation of palliative care for people with dementia and to explore whether there is a gap in knowledge necessitating further study. We reviewed the English literature published from 2000 to 2016, related to barriers to palliative care for people with dementia. Twenty-two articles met inclusion criteria for the review. Most originated in Europe or North America and were qualitative in nature. Four key themes were identified: administrative/policy issues, education, communication, and staff personal characteristics. Barriers to the delivery of palliative care for people with dementia have been studied for more than a decade, yet at present, there is a lack of consensus in practice. More research is needed related to barriers associated with personal characteristics. Such investigations have the potential to improve and better understand the complex nature of palliative care in this population.

Entities:  

Keywords:  Dementia; end of life care; healthcare providers; hospice care; palliative care

Mesh:

Year:  2017        PMID: 28754048     DOI: 10.21037/apm.2017.06.13

Source DB:  PubMed          Journal:  Ann Palliat Med        ISSN: 2224-5820


  20 in total

1.  Medicare Expenditures and Health Care Utilization in a Multiethnic Community-based Population With Dementia From Incidence to Death.

Authors:  Katherine A Ornstein; Carolyn W Zhu; Evan Bollens-Lund; Melissa D Aldridge; Howard Andrews; Nicole Schupf; Yaakov Stern
Journal:  Alzheimer Dis Assoc Disord       Date:  2018 Oct-Dec       Impact factor: 2.703

2.  Five-year risk of admission to long-term care home and death for older adults given a new diagnosis of dementia: a population-based retrospective cohort study.

Authors:  Gregory Huyer; Catherine R L Brown; Sarah Spruin; Amy T Hsu; Stacey Fisher; Douglas G Manuel; Susan E Bronskill; Danial Qureshi; Peter Tanuseputro
Journal:  CMAJ       Date:  2020-04-20       Impact factor: 8.262

3.  Integration of Health Information Technology and Promotion of Personhood in Family-Centered Dementia Care: Intervention Trial.

Authors:  Ellen L Brown; Nicole Ruggiano; Lisa Roberts; Peter J Clarke; Debra Lee Davis; Marc Agronin; David S Geldmacher; Monica Strauss Hough; Mariateresa Teri H Muñoz; C Victoria Framil; Xin Yang
Journal:  Res Gerontol Nurs       Date:  2021-09-01       Impact factor: 1.643

Review 4.  Dementia Care at End of Life: Current Approaches.

Authors:  Mairead M Bartley; Laura Suarez; Reem M A Shafi; Joshua M Baruth; Amanda J M Benarroch; Maria I Lapid
Journal:  Curr Psychiatry Rep       Date:  2018-06-23       Impact factor: 5.285

5.  Protocol for an observational cohort study identifying factors predicting accurately end of life in dementia with Lewy bodies and promoting quality end-of-life experiences: the PACE-DLB study.

Authors:  Melissa J Armstrong; Henry L Paulson; Susan M Maixner; Julie A Fields; Angela M Lunde; Bradley F Boeve; Carol Manning; James E Galvin; Angela S Taylor; Zhigang Li
Journal:  BMJ Open       Date:  2021-05-26       Impact factor: 2.692

6.  Practice of end-of-life care for patients with advanced dementia by hospital physicians and nurses: Comparison between medical and surgical wards.

Authors:  Meira Erel; Esther-Lee Marcus; Freda Dekeyser-Ganz
Journal:  Dementia (London)       Date:  2022-03-28

7.  What enables good end of life care for people with dementia? A multi-method qualitative study with key stakeholders.

Authors:  Claire Bamford; Richard Lee; Emma McLellan; Marie Poole; Karen Harrison-Dening; Julian Hughes; Louise Robinson; Catherine Exley
Journal:  BMC Geriatr       Date:  2018-12-04       Impact factor: 3.921

8.  End-of-life experiences in dementia with Lewy bodies: Qualitative interviews with former caregivers.

Authors:  Melissa J Armstrong; Slande Alliance; Angela Taylor; Pamela Corsentino; James E Galvin
Journal:  PLoS One       Date:  2019-05-30       Impact factor: 3.240

9.  Caregiver-Reported Barriers to Quality End-of-Life Care in Dementia With Lewy Bodies: A Qualitative Analysis.

Authors:  Melissa J Armstrong; Slande Alliance; Pamela Corsentino; Susan M Maixner; Henry L Paulson; Angela Taylor
Journal:  Am J Hosp Palliat Care       Date:  2020-01-06       Impact factor: 2.500

10.  Place of Death for Persons With and Without Cognitive Impairment in the United States.

Authors:  Natalie G Regier; Valerie T Cotter; Bryan R Hansen; Janiece L Taylor; Rebecca J Wright
Journal:  J Am Geriatr Soc       Date:  2021-01-20       Impact factor: 5.562

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