Literature DB >> 28751135

Chronic Sorrow in Parents of Children with a Chronic Illness or Disability: An Integrative Literature Review.

Mary Beth Coughlin1, Kristen A Sethares2.   

Abstract

PROBLEM: This integrative review aims to synthesize the findings of studies on chronic sorrow in parents, to analyze the findings along three specific research questions, and to identify areas for future research. ELIGIBILITY CRITERIA: Studies of parents, mothers and/or fathers of non-adult children published in peer-reviewed journals that answered the research questions: 1) How does the experience of chronic sorrow differ between mothers and fathers? 2) What factors have been identified to impact the experience of chronic sorrow over time? 3) What strategies by health care providers for helping parents cope with chronic sorrow have been identified to be most and least helpful? SAMPLE: Nineteen studies from a literature search within the databases of CINAHL, MEDLINE, PsycINFO, Psycarticles and SocIndex were included in the review.
RESULTS: Findings suggest that mothers experience more intense chronic sorrow compared with fathers. Health care crises and developmental milestones are potent triggers for resurgence of chronic sorrow. Helpful strategies by healthcare providers include providing information, helping to procure respite and being empathetic and compassionate.
CONCLUSIONS: Healthcare providers need to understand that chronic sorrow is a normal consequence of having a child with a chronic illness or disability. IMPLICATIONS: Family-centered interventions should be individualized and aimed at providing increased comfort to parents in times of need. Further research that looks at the effectiveness of interventions is needed.
Copyright © 2017 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Children; Chronic illness; Chronic sorrow; Disability; Parents

Mesh:

Year:  2017        PMID: 28751135     DOI: 10.1016/j.pedn.2017.06.011

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  7 in total

1.  "Tell Me About Your Child": A Grounded Theory Study of Mothers' Understanding of Language Disorder.

Authors:  Andrea C Ash; Tyler T Christopulos; Sean M Redmond
Journal:  Am J Speech Lang Pathol       Date:  2020-04-29       Impact factor: 2.408

2.  "Concurrent Ropes and Ladders": Mapping and Conceptualizing the Emotional Loss Experience of Parents Following Pediatric Acquired Brain Injury.

Authors:  Einat Yehene; Pnina Steinberg; Maya Gerner; Amichai Brezner; Jana Landa
Journal:  Qual Health Res       Date:  2021-05-24

3.  Online cognitive-behavioral based group interventions for adolescents with chronic illness and parents: study protocol of two multicenter randomized controlled trials.

Authors:  Miriam Douma; Linde Scholten; Heleen Maurice-Stam; Martha A Grootenhuis
Journal:  BMC Pediatr       Date:  2018-07-18       Impact factor: 2.125

4.  Quality of Life and Concerns in Parent Caregivers of Adult Children Diagnosed with Intellectual Disability: A Qualitative Study.

Authors:  María Inmaculada Fernández-Ávalos; María Nieves Pérez-Marfil; Rosario Ferrer-Cascales; Francisco Cruz-Quintana; Violeta Clement-Carbonell; Manuel Fernández-Alcántara
Journal:  Int J Environ Res Public Health       Date:  2020-11-23       Impact factor: 3.390

5.  Matching Psychosocial Support Needs of Parents of a Child with a Chronic Illness to a Feasible Intervention.

Authors:  Miriam Douma; Charlotte P Bouman; Hedy A van Oers; Heleen Maurice-Stam; Lotte Haverman; Martha A Grootenhuis; Linde Scholten
Journal:  Matern Child Health J       Date:  2020-10

6.  Online psychosocial group intervention for parents: Positive effects on anxiety and depression.

Authors:  Miriam Douma; Heleen Maurice-Stam; Bianca Gorter; Yvette Krol; Marieke Verkleij; Lianne Wiltink; Linde Scholten; Martha A Grootenhuis
Journal:  J Pediatr Psychol       Date:  2021-02-19

7.  Single session therapy in pediatric healthcare: the value of adopting a strengths-based approach for families living with neurological disorders.

Authors:  Janice Mulligan; Heather Olivieri; Katarina Young; Jia Lin; Samantha J Anthony
Journal:  Child Adolesc Psychiatry Ment Health       Date:  2022-07-22       Impact factor: 7.494

  7 in total

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