Lauren J Van Scoy1, Jean M Reading2, Margaret Hopkins3, Brandi Smith2, Judy Dillon4, Michael J Green5, Benjamin H Levi6. 1. Department of Medicine and Humanities, Pennsylvania State University College of Medicine, Hershey, Pennsylvania, USA. Electronic address: lvanscoy@pennstatehealth.psu.edu. 2. Department of Medicine, Pennsylvania State University College of Medicine, Hershey, Pennsylvania, USA. 3. Department of Humanities, Pennsylvania State University College of Medicine, Hershey, Pennsylvania, USA. 4. Department of Nursing, Pennsylvania State University College of Medicine, Hershey, Pennsylvania, USA. 5. Department of Medicine and Humanities, Pennsylvania State University College of Medicine, Hershey, Pennsylvania, USA. 6. Department of Pediatrics and Humanities, Pennsylvania State University College of Medicine, Hershey, Pennsylvania, USA.
Abstract
CONTEXT: Advance care planning (ACP) is an important process that involves discussing and documenting one's values and preferences for medical care, particularly end-of-life treatments. OBJECTIVES: This convergent, mixed-methods study assessed whether an end-of-life conversation card game is an acceptable and effective means for performing ACP for patients with chronic illness and/or their caregivers when deployed in a community setting. METHODS: Twenty-two games (n = 93 participants) were held in community settings surrounding Hershey, PA in 2016. Participants were recruited using random sampling from patient databases and also convenience sampling (i.e., flyers). Quantitative questionnaires and qualitative focus group interviews were administered to assess the game experience and subsequent performance of ACP behaviors. RESULTS: Both quantitative and qualitative data found that Community Game Day was a well-received, positive experience for participants and 75% of participants performed ACP within three months post-intervention. CONCLUSIONS: These findings suggest that using a conversation game during community outreach is a useful approach for engaging patients and caregivers in ACP. The convergence of quantitative and qualitative data strongly supports the continued investigation of the game in randomized controlled trials.
CONTEXT: Advance care planning (ACP) is an important process that involves discussing and documenting one's values and preferences for medical care, particularly end-of-life treatments. OBJECTIVES: This convergent, mixed-methods study assessed whether an end-of-life conversation card game is an acceptable and effective means for performing ACP for patients with chronic illness and/or their caregivers when deployed in a community setting. METHODS: Twenty-two games (n = 93 participants) were held in community settings surrounding Hershey, PA in 2016. Participants were recruited using random sampling from patient databases and also convenience sampling (i.e., flyers). Quantitative questionnaires and qualitative focus group interviews were administered to assess the game experience and subsequent performance of ACP behaviors. RESULTS: Both quantitative and qualitative data found that Community Game Day was a well-received, positive experience for participants and 75% of participants performed ACP within three months post-intervention. CONCLUSIONS: These findings suggest that using a conversation game during community outreach is a useful approach for engaging patients and caregivers in ACP. The convergence of quantitative and qualitative data strongly supports the continued investigation of the game in randomized controlled trials.
Authors: Regina M Fink; Danielle M Kline; F Amos Bailey; Daniel L Handel; Sarah R Jordan; Hillary D Lum; Stacy M Fischer Journal: J Palliat Med Date: 2020-01-16 Impact factor: 2.947
Authors: Lauren Jodi Van Scoy; Michael J Green; Pamela D Witt; Cindy Bramble; Christopher Richardson; Irene Putzig; Olubukola Toyobo; Emily Wasserman; Vernon M Chinchilli; Amy Tucci; Benjamin H Levi Journal: J Gen Intern Med Date: 2020-09-18 Impact factor: 5.128
Authors: Lauren Jodi Van Scoy; Benjamin H Levi; Pamela Witt; Cindy Bramble; Christopher Richardson; Irene Putzig; A Rose Levi; Emily Wasserman; Vernon Chinchilli; Amy Tucci; Michael J Green Journal: JAMA Netw Open Date: 2020-05-01
Authors: Lauren J Van Scoy; Benjamin H Levi; Cindy Bramble; William Calo; Vernon M Chinchilli; Lindsey Currin; Denise Grant; Christopher Hollenbeak; Maria Katsaros; Sara Marlin; Allison M Scott; Amy Tucci; Erika VanDyke; Emily Wasserman; Pamela Witt; Michael J Green Journal: Trials Date: 2022-09-30 Impact factor: 2.728