Literature DB >> 28712613

Patient-Reported Outcome and Observer-Reported Outcome Assessment in Rare Disease Trials.

Sarah Acaster1.   

Abstract

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Year:  2017        PMID： 28712613     DOI： 10.1016/j.jval.2017.05.017

Source DB:  PubMed          Journal:  Value Health        ISSN： 1098-3015            Impact factor:   5.725


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  2 in total

Review 1.  To what degree are orphan drugs patient-centered? A review of the current state of clinical research in rare diseases.

Authors:  Sally Lanar; Catherine Acquadro; James Seaton; Isabelle Savre; Benoit Arnould
Journal:  Orphanet J Rare Dis       Date:  2020-06-03       Impact factor: 4.123

2.  Symptoms and Dietary Impact in Hypertriglyceridemia-Associated Pancreatitis: Development and Content Validity of Two New Measures.

Authors:  Claire Burbridge; Jason A Randall; Robert J Sanchez; Hayes Dansky; Tara Symonds; Cynthia J Girman; Joshua A Strayer; Karen L Selk; David C Whitcomb; Erin E Kershaw
Journal:  Pharmacoecon Open       Date:  2020-03
  2 in total

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