Literature DB >> 28707039

Moving on: transitioning young people with chronic kidney disease to adult care.

Anna Francis1, David W Johnson2,3,4, Jonathan C Craig5, Germaine Wong5.   

Abstract

Advances in the care of children mean that adolescents with chronic kidney disease (CKD) are surviving to adulthood and requiring transition to adult care. The transition phase is well-recognised to be associated with considerable excess morbidity and graft loss, but these outcomes may be avoidable through a structured transition programme. This review will discuss the (1) challenges encountered by patients with CKD, caregivers and clinicians during transition; (2) predictors and outcomes of transition; (3) current guidelines on transition from paediatric to adult renal services; (4) interventions and research directions that may help to improve the care and outcomes for young people with CKD in transition. In spite of the substantial improvement in health gains required for this disadvantaged population, there is to date only limited evidence on the effects of current transition programmes.

Entities:  

Keywords:  Adolescent; Child; Chronic renal insufficiency; Graft survival; Kidney transplantation; Transition to adult care; Young adult

Mesh:

Year:  2017        PMID: 28707039     DOI: 10.1007/s00467-017-3728-y

Source DB:  PubMed          Journal:  Pediatr Nephrol        ISSN: 0931-041X            Impact factor:   3.714


  61 in total

1.  Emerging adulthood. A theory of development from the late teens through the twenties.

Authors:  J J Arnett
Journal:  Am Psychol       Date:  2000-05

2.  Psychological distress and adherence to the medical regimen among adolescent renal transplant recipients.

Authors:  Lili Penkower; Mary Amanda Dew; Demetrius Ellis; Susan M Sereika; Julius M M Kitutu; Ron Shapiro
Journal:  Am J Transplant       Date:  2003-11       Impact factor: 8.086

3.  Patient perspectives of a young adult renal clinic: a mixed-methods evaluation.

Authors:  Allison Tong; Kate Gow; Germaine Wong; Paul Henning; Robert Carroll
Journal:  Nephrology (Carlton)       Date:  2015-05       Impact factor: 2.506

4.  Differences between paediatric and adult presentation of ESKD in attainment of adult social goals.

Authors:  Helen Lewis; Stephen D Marks
Journal:  Pediatr Nephrol       Date:  2014-07-02       Impact factor: 3.714

5.  Cognitive improvement in children with CKD after transplant.

Authors:  Phil Icard; Stephen R Hooper; Debbie S Gipson; Maria E Ferris
Journal:  Pediatr Transplant       Date:  2010-11

6.  The transition of kidney transplant recipients: a work in progress.

Authors:  Swasti Chaturvedi; Colin L Jones; Rowan G Walker; Susan M Sawyer
Journal:  Pediatr Nephrol       Date:  2009-02-24       Impact factor: 3.714

7.  Usability testing of the Internet program: "Teens Taking Charge: Managing My Transplant Online".

Authors:  M Korus; E Cruchley; J N Stinson; A Gold; S J Anthony
Journal:  Pediatr Transplant       Date:  2014-12-12

8.  Long-term neurocognitive outcomes of patients with end-stage renal disease during infancy.

Authors:  Rebecca J Johnson; Bradley A Warady
Journal:  Pediatr Nephrol       Date:  2013-04-04       Impact factor: 3.714

9.  Renal allograft loss during transition to adult healthcare services among pediatric renal transplant patients.

Authors:  Susan M Koshy; Diane Hebert; Kelvin Lam; Therese A Stukel; Astrid Guttmann
Journal:  Transplantation       Date:  2009-06-15       Impact factor: 4.939

10.  Different models of transition to adult care after pediatric kidney transplantation: a comparative study.

Authors:  L Pape; J Lämmermühle; M Oldhafer; C Blume; R Weiss; T Ahlenstiel
Journal:  Pediatr Transplant       Date:  2013-06-04
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  5 in total

1.  Current management of transition of young people affected by rare renal conditions in the ERKNet.

Authors:  Martin Kreuzer; Jens Drube; Jenny Prüfe; Franz Schaefer; Lars Pape
Journal:  Eur J Hum Genet       Date:  2019-07-30       Impact factor: 4.246

Review 2.  Psychosocial considerations and recommendations for care of pediatric patients on dialysis.

Authors:  Michelle A Clementi; Cortney Taylor Zimmerman
Journal:  Pediatr Nephrol       Date:  2019-03-20       Impact factor: 3.714

3.  Effect and features of information technology-based interventions on self-management in adolescent and young adult kidney transplant recipients: a systematic review.

Authors:  Raheleh Ganjali; Farnaz Khoshrounejad; Mohammad Reza Mazaheri Habibi; Zhila Taherzadeh; Reza Golmakani; Sayyed Mostafa Mostafavi; Saeid Eslami
Journal:  Adolesc Health Med Ther       Date:  2019-10-15

4.  Transition of Chronic Pediatric Nephrological Patients to Adult Care Excluding Patients on Renal Replacement Therapy with Literature Review.

Authors:  Mirjam Močnik; Sonja Golob Jančič; Nataša Marčun Varda
Journal:  Children (Basel)       Date:  2022-06-26

5.  Long-term health-related quality of life outcomes of adults with pediatric onset of frequently relapsing or steroid-dependent nephrotic syndrome.

Authors:  Vincent Audard; Hélène Mellerio; Marie-Sophie Meuleman; Sophie Guilmin-Crépon; Aurélie Hummel; Eric Daugas; Agnès Dumas; Fallou Leye; Jacques Dantal; Claire Rigothier; François Provot; Dominique Chauveau; Stéphane Burtey; Alexandre Hertig; Karine Dahan; Antoine Durrbach; Claire Dossier; Alexandre Karras; Dominique Guerrot; Vincent Esnault; Philippe Rémy; Ziad A Massy; Isabelle Tostivint; Marie-Pascale Morin; Philippe Zaoui; Olivier Fritz; Moglie Le Quintrec; Alain Wynckel; Aurélie Bourmaud; Olivia Boyer; Dil Sahali; Corinne Alberti
Journal:  J Nephrol       Date:  2021-07-05       Impact factor: 3.902

  5 in total

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