Literature DB >> 28686333

eHealth provides a novel opportunity to exploit the advantages of the Nordic countries in psychiatric genetic research, building on the public health care system, biobanks, and registries.

Ole A Andreassen1.   

Abstract

Nordic countries have played an important role in the recent progress in psychiatric genetics, both with large well-characterized samples and expertise. The Nordic countries have research advantages due to the organization of their societies, including system of personal identifiers, national health registries with information about diseases, treatment and prescriptions, and a public health system with geographical catchment areas. For psychiatric genetic research, the large biobanks and population surveys are a unique added value. Further, the population is motivated to participate in research, and there is a trust in the institutions of the society. These factors have been important for Nordic contributions to biomedical research, and particularly psychiatric genetics. In the era of eHealth, the situation seems even more advantageous for Nordic countries. The system with public health care makes it easy to implement national measures, and most of the Nordic health care sector is already based on electronic information. The potential advantages regarding informed consent, large scale recruitment and follow-up, and longitudinal cohort studies are tremendous. New precision medicine approaches can be tested within the health care system, with an integrated approach, using large hospitals or regions of the country as a test beds. However, data protection and legal framework have to be clarified. In order to succeed, it is important to keep the people's trust, and maintain the high ethical standards and systems for secure data management. Then the full potential of the Nordic countries can be leveraged in the new era of precision medicine including psychiatric genetics.
© 2017 Wiley Periodicals, Inc.

Entities:  

Keywords:  Nordic countries; biobanks; personal identifies; population surveys; publich health care

Mesh:

Year:  2017        PMID: 28686333     DOI: 10.1002/ajmg.b.32561

Source DB:  PubMed          Journal:  Am J Med Genet B Neuropsychiatr Genet        ISSN: 1552-4841            Impact factor:   3.568


  5 in total

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Authors:  Elizabeth C Prom-Wormley; James S Clifford; Jessica L Bourdon; Peter Barr; Courtney Blondino; Kevin M Ball; Joshua Montgomery; Jonathan K Davis; Joseph E Real; Alexis C Edwards; Dawn L Thiselton; Gwen Corley Creighton; De'Nisha Wilson; Cynthia Newbille
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Journal:  Digit Health       Date:  2022-05-26

Review 3.  Four Actionable Bottlenecks and Potential Solutions to Translating Psychiatric Genetics Research: An Expert Review.

Authors:  Jessica L Bourdon; Rachel A Davies; Elizabeth C Long
Journal:  Public Health Genomics       Date:  2020-11-04       Impact factor: 2.000

4.  Integrating data from multiple Finnish biobanks and national health-care registers for retrospective studies: Practical experiences.

Authors:  Jaakko Lähteenmäki; Anna-Leena Vuorinen; Juha Pajula; Kari Harno; Mika Lehto; Mikko Niemi; Mark Van Gils
Journal:  Scand J Public Health       Date:  2021-04-12       Impact factor: 3.199

5.  Willingness to share information for energy efficiency: exploring differences and drivers across the Nordic countries.

Authors:  Joseph Anthony L Reyes
Journal:  Energy Sustain Soc       Date:  2022-09-16       Impact factor: 4.494

  5 in total

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