Literature DB >> 28680279

Palliative care as a public health issue: understanding disparities in access to palliative care for the homeless population living in Toronto, based on a policy analysis.

B Henry1,2,3, N Dosani3,4,5,6, L Huynh1,3, N Amirault4.   

Abstract

Even in a developed country such as Canada, there are disparities in just access to adequate health care-and, more specifically, palliative care. That inequality is most notable in an underserved group such as the homeless population. Even the word "homeless" has become both a negative descriptor and a stereotype in our society. We posit that the provision of hospice palliative care is structured on several problematic assumptions: an expectation that patients will have an informal support network (family and friends), a stable and secure residence, a predictive terminal illness trajectory, and reasonable access to health care. Those assumptions create structural inequality within the system. Homeless individuals have considerable experience with death and dying, and qualitative research has shown them to hold the expectation that their death will be both sudden and violent. Here, we look at the current data concerning known disparities in access to good palliative care services experienced by the homeless population, based on a stakeholder analysis of the available literature. That information, coupled with the use of a public health ethics decision-making tool, such as the Good Decision Making in Real Time framework, is used to explore the common ethics challenges that can arise in public health interventions aimed at the provision of end-of-life care to homeless adults. A broad exploration of the system that underlies our care is critical to the proper and appropriate provision of care for homeless individuals.

Entities:  

Keywords:  Homelessness; end of life; health care disparities; palliative care

Year:  2017        PMID: 28680279      PMCID: PMC5486384          DOI: 10.3747/co.24.3129

Source DB:  PubMed          Journal:  Curr Oncol        ISSN: 1198-0052            Impact factor:   3.677


  12 in total

1.  Increasing access--a qualitative study of homelessness and palliative care in a major urban center.

Authors:  Yonah Krakowsky; Mirriam Gofine; Pnina Brown; Jana Danziger; Holly Knowles
Journal:  Am J Hosp Palliat Care       Date:  2012-06-05       Impact factor: 2.500

2.  Effect of an End-of-Life Planning Intervention on the completion of advance directives in homeless persons: a randomized trial.

Authors:  John Song; Edward R Ratner; Melanie M Wall; Dianne M Bartels; Nancy Ulvestad; Dawn Petroskas; Melissa West; Anne Marie Weber-Main; Leah Grengs; Lillian Gelberg
Journal:  Ann Intern Med       Date:  2010-07-20       Impact factor: 25.391

Review 3.  Health disparities and health equity: concepts and measurement.

Authors:  Paula Braveman
Journal:  Annu Rev Public Health       Date:  2006       Impact factor: 21.981

Review 4.  Dying in the margins: understanding palliative care and socioeconomic deprivation in the developed world.

Authors:  Joanne M Lewis; Michelle DiGiacomo; David C Currow; Patricia M Davidson
Journal:  J Pain Symptom Manage       Date:  2011-03-12       Impact factor: 3.612

5.  End-of-life care for homeless patients: "she says she is there to help me in any situation".

Authors:  Margot B Kushel; Christine Miaskowski
Journal:  JAMA       Date:  2006-12-27       Impact factor: 56.272

6.  Mortality among men using homeless shelters in Toronto, Ontario.

Authors:  S W Hwang
Journal:  JAMA       Date:  2000-04-26       Impact factor: 56.272

7.  The health and housing in transition study: a longitudinal study of the health of homeless and vulnerably housed adults in three Canadian cities.

Authors:  Stephen W Hwang; Tim Aubry; Anita Palepu; Susan Farrell; Rosane Nisenbaum; Anita M Hubley; Fran Klodawsky; Evie Gogosis; Elizabeth Hay; Shannon Pidlubny; Tatiana Dowbor; Catharine Chambers
Journal:  Int J Public Health       Date:  2011-08-20       Impact factor: 3.380

8.  Does end-of-life decision making matter? Perspectives of older homeless adults.

Authors:  Eunjeong Ko; Holly Nelson-Becker
Journal:  Am J Hosp Palliat Care       Date:  2013-03-21       Impact factor: 2.500

Review 9.  Advancing palliative care as a human right.

Authors:  Liz Gwyther; Frank Brennan; Richard Harding
Journal:  J Pain Symptom Manage       Date:  2009-09-24       Impact factor: 3.612

10.  Recommendations for improving the end-of-life care system for homeless populations: A qualitative study of the views of Canadian health and social services professionals.

Authors:  Ryan McNeil; Manal Guirguis-Younger; Laura B Dilley
Journal:  BMC Palliat Care       Date:  2012-09-15       Impact factor: 3.234

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  2 in total

1.  Challenges to discussing palliative care with people experiencing homelessness: a qualitative study.

Authors:  Briony F Hudson; Caroline Shulman; Joseph Low; Nigel Hewett; Julian Daley; Sarah Davis; Nimah Brophy; Diana Howard; Bella Vivat; Peter Kennedy; Patrick Stone
Journal:  BMJ Open       Date:  2017-11-28       Impact factor: 2.692

2.  Caregiving at the margins: An ethnographic exploration of family caregivers experiences providing care for structurally vulnerable populations at the end-of-life.

Authors:  Kelli I Stajduhar; Melissa Giesbrecht; Ashley Mollison; Naheed Dosani; Ryan McNeil
Journal:  Palliat Med       Date:  2020-04-27       Impact factor: 4.762

  2 in total

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