Cynthia A Honan1,2, Skye McDonald2,3, Robyn Tate2,4,5, Tamara Ownsworth2,6, Leanne Togher2,7, Jennifer Fleming2,8, Vicki Anderson2,9, Angela Morgan2,10, Cathy Catroppa2,9, Jacinta Douglas2,11, Heather Francis2,12, Travis Wearne2,3, Linda Sigmundsdottir2,4,5, Jennie Ponsford2,13. 1. a Department of Psychology, School of Medicine , University of Tasmania , Newnham , Australia. 2. b Moving Ahead Centre for Research Excellence in Brain Recovery , Australia. 3. c School of Psychology , University of New South Wales , Sydney , Australia. 4. d Sydney Medical School, Northern Clinical School , The University of Sydney , Sydney , Australia. 5. e John Walsh Centre for Rehabilitation Studies , Sydney , Australia. 6. f School of Applied Psychology , Griffith University , Brisbane , Australia. 7. g Faculty of Health Sciences , The University of Sydney , Sydney , Australia. 8. h School of Health and Rehabilitation Sciences, Faculty of Health and Behavioural Sciences , University of Queensland , Brisbane , Australia. 9. i Murdoch Childrens Research Institute, Psychological Sciences & Paediatrics , University of Melbourne , Melbourne , Australia. 10. j Murdoch Childrens Research Institute, Centre for Neuroscience of Speech , University of Melbourne , Melbourne , Australia. 11. k School of Allied Health, Department of Community and Clinical Allied Health , LaTrobe University , Melbourne , Australia. 12. l Department of Psychology, Faculty of Human Sciences , Macquarie University , Sydney , Australia. 13. m School of Psychological Sciences , Monash University , Melbourne , Australia.
Abstract
BACKGROUND: Traumatic brain injury (TBI) can reduce psychosocial functioning, causing relationship, family, and employment difficulties. The present study by Moving Ahead: Centre for Research Excellence (CRE) in Brain Recovery aimed to identify a set of adult outcome instruments for moderate-to-severe TBI psychosocial research. PROCEDURE: A review of 115 instruments (identified through nomination, literature search, and international expert opinion) was conducted over a 15-month period. Eleven psychosocial areas were examined: Global Outcome, Communication, Social Cognition, Behavioural and Executive Function, Other Neuropsychological Functioning, Psychological Status, TBI-related Symptoms, Activities and Participation, Support and Relationships, Sense of Self, and Health-related Quality of Life. Individual instruments were considered against selection guidelines, and specific measures that best met the guidelines were identified as core (common across all studies), supplemental (dependent on study type) or emerging. RESULTS: The final recommendations, organised in accordance with the World Health Organisation's International Classification of Functioning taxonomy, comprised 56 instruments for use in early recovery, outcome, and intervention studies. CONCLUSION: These recommendations provide a coherent framework along with identified outcome instruments to guide psychosocial research in moderate-to-severe TBI. Adherence to the recommendations will enable data-pooling and comparison across studies and research settings facilitating consistent measurement across the lifespan.
BACKGROUND:Traumatic brain injury (TBI) can reduce psychosocial functioning, causing relationship, family, and employment difficulties. The present study by Moving Ahead: Centre for Research Excellence (CRE) in Brain Recovery aimed to identify a set of adult outcome instruments for moderate-to-severe TBI psychosocial research. PROCEDURE: A review of 115 instruments (identified through nomination, literature search, and international expert opinion) was conducted over a 15-month period. Eleven psychosocial areas were examined: Global Outcome, Communication, Social Cognition, Behavioural and Executive Function, Other Neuropsychological Functioning, Psychological Status, TBI-related Symptoms, Activities and Participation, Support and Relationships, Sense of Self, and Health-related Quality of Life. Individual instruments were considered against selection guidelines, and specific measures that best met the guidelines were identified as core (common across all studies), supplemental (dependent on study type) or emerging. RESULTS: The final recommendations, organised in accordance with the World Health Organisation's International Classification of Functioning taxonomy, comprised 56 instruments for use in early recovery, outcome, and intervention studies. CONCLUSION: These recommendations provide a coherent framework along with identified outcome instruments to guide psychosocial research in moderate-to-severe TBI. Adherence to the recommendations will enable data-pooling and comparison across studies and research settings facilitating consistent measurement across the lifespan.
Entities:
Keywords:
Traumatic brain injury; outcome assessment; psychosocial; recommendations; remediation; research
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