Huseyin Canaz1, Gokhan Canaz2, Irem Dogan3, Ibrahim Alatas1. 1. Department of Neurosurgery, Florence Nightingale Hospital, Istanbul Bilim University, Istanbul, Turkey. 2. Department of Neurosurgery, Bakirkoy Research and Training Hospital for Neurology, Neurosurgery and Psychiatry, 34147, Istanbul, Turkey. gokhancanaz@gmail.com. 3. Faculty of Medicine, Istanbul Bilim University, Istanbul, Turkey.
Abstract
PURPOSE: Evaluation of the effects of ventriculoperitoenal shunt and incontinence presence on health-related quality of life of ambulatory myelomeningocele patients. METHODS: The study group included 35 myelomeningocele patients, between 5 and 18 years old (mean age = 9.6), who were neonatally operated. All patients were ambulatory. The Child Edition of the Child Health and Illness Profile (CHIP-CE) used to evaluate the patient group. Seventeen patients were using clean intermittent catheterization and nine patients had ventriculoperitoneal shunt. RESULTS: The CHIP-CE has five domains, and in satisfaction, resilience and achievement domains, significant lower scores were obtained from our study group. In terms of clean intermittent catheterization use, we got significantly lower scores on satisfaction, resilience and achievement domains (p < 0.05). According to the presence of ventriculoperitoneal shunt, we found lower scores in satisfaction, resilience, risk avoidance and achievement domains but the differences were not significant (p > 0.05). No significant difference was spotted according to gender and age. CONCLUSIONS: Continence problems have important effects on life quality of myelomeningocele patients. Incontinency should always be considered as a major variable in health-related quality of life evaluations.
PURPOSE: Evaluation of the effects of ventriculoperitoenal shunt and incontinence presence on health-related quality of life of ambulatory myelomeningocele patients. METHODS: The study group included 35 myelomeningocele patients, between 5 and 18 years old (mean age = 9.6), who were neonatally operated. All patients were ambulatory. The Child Edition of the Child Health and Illness Profile (CHIP-CE) used to evaluate the patient group. Seventeen patients were using clean intermittent catheterization and nine patients had ventriculoperitoneal shunt. RESULTS: The CHIP-CE has five domains, and in satisfaction, resilience and achievement domains, significant lower scores were obtained from our study group. In terms of clean intermittent catheterization use, we got significantly lower scores on satisfaction, resilience and achievement domains (p < 0.05). According to the presence of ventriculoperitoneal shunt, we found lower scores in satisfaction, resilience, risk avoidance and achievement domains but the differences were not significant (p > 0.05). No significant difference was spotted according to gender and age. CONCLUSIONS: Continence problems have important effects on life quality of myelomeningocele patients. Incontinency should always be considered as a major variable in health-related quality of life evaluations.
Entities:
Keywords:
Incontinence; Myelomeningocele; Quality of life; Spina bifida; Ventriculoperitoneal shunt
Authors: M A G C Schoenmakers; C S P M Uiterwaal; V A M Gulmans; R H J M Gooskens; P J M Helders Journal: Clin Rehabil Date: 2005-09 Impact factor: 3.477
Authors: Anne W Riley; Christopher B Forrest; Barbara Starfield; George W Rebok; Judith A Robertson; Bert F Green Journal: Med Care Date: 2004-03 Impact factor: 2.983
Authors: Anne W Riley; Christopher B Forrest; George W Rebok; Barbara Starfield; Bert F Green; Judith A Robertson; Phyllis Friello Journal: Med Care Date: 2004-03 Impact factor: 2.983