Literature DB >> 28633483

An informatics research agenda to support patient and family empowerment and engagement in care and recovery during and after hospitalization.

Sarah Collins1,2,3, Patricia Dykes1,2, David W Bates1,2,3,4, Brittany Couture1, Ronen Rozenblum1,2, Jennifer Prey5, Kristin O'Reilly6, Patricia Q Bourie6, Cindy Dwyer7, S Ryan Greysen8, Jeffery Smith9, Michael Gropper10, Anuj K Dalal1,2.   

Abstract

As part of an interdisciplinary acute care patient portal task force with members from 10 academic medical centers and professional organizations, we held a national workshop with 71 attendees representing over 30 health systems, professional organizations, and technology companies. Our consensus approach identified 7 key sociotechnical and evaluation research focus areas related to the consumption and capture of information from patients, care partners (eg, family, friends), and clinicians through portals in the acute and post-acute care settings. The 7 research areas were: (1) standards, (2) privacy and security, (3) user-centered design, (4) implementation, (5) data and content, (6) clinical decision support, and (7) measurement. Patient portals are not yet in routine use in the acute and post-acute setting, and research focused on the identified domains should increase the likelihood that they will deliver benefit, especially as there are differences between needs in acute and post-acute care compared to the ambulatory setting.
© The Author 2017. Published by Oxford University Press on behalf of the American Medical Informatics Association. All rights reserved. For Permissions, please email: journals.permissions@oup.com.

Entities:  

Keywords:  patient engagement; patient experience; patient portals; quality of care

Mesh:

Year:  2018        PMID: 28633483     DOI: 10.1093/jamia/ocx054

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  17 in total

1.  Engaging hospitalized patients with personalized health information: a randomized trial of an inpatient portal.

Authors:  Ruth M Masterson Creber; Lisa V Grossman; Beatriz Ryan; Min Qian; Fernanda C G Polubriaginof; Susan Restaino; Suzanne Bakken; George Hripcsak; David K Vawdrey
Journal:  J Am Med Inform Assoc       Date:  2019-02-01       Impact factor: 4.497

2.  Facilitating Organizational Change to Accommodate an Inpatient Portal.

Authors:  Daniel M Walker; Alice Gaughan; Naleef Fareed; Susan Moffatt-Bruce; Ann Scheck McAlearney
Journal:  Appl Clin Inform       Date:  2019-11-27       Impact factor: 2.342

3.  Potential of an Electronic Health Record-Integrated Patient Portal for Improving Care Plan Concordance during Acute Care.

Authors:  Anuj K Dalal; Patricia Dykes; Lipika Samal; Kelly McNally; Eli Mlaver; Cathy S Yoon; Stuart R Lipsitz; David W Bates
Journal:  Appl Clin Inform       Date:  2019-05-29       Impact factor: 2.342

4.  Exploring the Design of an Inpatient Peer Support Tool: Views of Adult Patients.

Authors:  Shefali Haldar; Sonali R Mishra; Maher Khelifi; Ari H Pollack; Wanda Pratt
Journal:  AMIA Annu Symp Proc       Date:  2018-12-05

5.  Must We Bust the Trust?: Understanding How the Clinician-Patient Relationship Influences Patient Engagement in Safety.

Authors:  Sonali R Mishra; Shefali Haldar; Maher Khelifi; Ari H Pollack; Pratt Wanda
Journal:  AMIA Annu Symp Proc       Date:  2018-12-05

6.  Inpatients Sign On: An Opportunity to Engage Hospitalized Patients and Caregivers Using Inpatient Portals.

Authors:  Michelle M Kelly; Peter L T Hoonakker; Ryan J Coller
Journal:  Med Care       Date:  2019-02       Impact factor: 2.983

7.  Parental Perceptions of Displayed Patient Data in a PICU: An Example of Unintentional Empowerment.

Authors:  Onur Asan; Matthew C Scanlon; Bradley Crotty; Richard J Holden; Kathryn E Flynn
Journal:  Pediatr Crit Care Med       Date:  2019-05       Impact factor: 3.624

8.  Putting the social back into sociotechnical: Case studies of co-design in digital health.

Authors:  Chrysanthi Papoutsi; Joseph Wherton; Sara Shaw; Clare Morrison; Trisha Greenhalgh
Journal:  J Am Med Inform Assoc       Date:  2021-02-15       Impact factor: 4.497

9.  Common Consumer Health-Related Needs in the Pediatric Hospital Setting: Lessons from an Engagement Consultation Service.

Authors:  Daniel J Lee; Robert Cronin; Jamie Robinson; Shilo Anders; Kim Unertl; Katherine Kelly; Heather Hankins; Ryan Skeens; Gretchen P Jackson
Journal:  Appl Clin Inform       Date:  2018-08-08       Impact factor: 2.342

10.  Framework for Evaluating and Implementing Inpatient Portals: a Multi-stakeholder Perspective.

Authors:  Daniel M Walker; Jennifer L Hefner; Cynthia J Sieck; Timothy R Huerta; Ann Scheck McAlearney
Journal:  J Med Syst       Date:  2018-07-16       Impact factor: 4.460

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