Simon van Genderen1, Guy Plasqui1, Désirée van der Heijde2, Floris van Gaalen2, Liesbeth Heuft3, Jolanda Luime4, Anneke Spoorenberg5, Suzanne Arends5, Diane Lacaille6, Monique Gignac7, Robert Landewé8, Annelies Boonen1. 1. Maastricht University, Maastricht, The Netherlands. 2. Leiden University Medical Center, Leiden, the Netherlands. 3. Sint Laurentius Hospital Roermond and Sint Jans Gasthuis Weert, Roermond and Weert, The Netherlands. 4. Erasmus Medical Center Rotterdam, Rotterdam, The Netherlands. 5. University of Groningen, University Medical Center Groningen, and Medical Center Leeuwarden, Leeuwarden, The Netherlands. 6. University of British Columbia, Vancouver, Canada, and Arthritis Research Centre of Canada, British Columbia, Canada. 7. Institute for Work & Health and University of Toronto, Toronto, Canada. 8. Amsterdam Medical Center, Amsterdam, The Netherlands.
Abstract
OBJECTIVE: Participation in society of persons with chronic diseases receives increasing attention. However, little is known about which components of participation are most relevant to life satisfaction. This study examines the association between several aspects of social role participation and satisfaction with life (SWL) in patients with ankylosing spondylitis (AS) compared to population controls. METHODS: In a cross-sectional study, participants completed the Social Role Participation Questionnaire (SRPQ) and SWL scale. The SRPQ assesses several dimensions of participation (importance, satisfaction with performance, and satisfaction with time and physical difficulty) in 11 roles representing 3 domains (interpersonal relations, leisure, and work). For individuals with AS and controls, the association between role domains and SWL was examined using linear regression for each participation dimension separately, in the total and the employed population, adjusting for age, sex, education, and income. RESULTS: A total of 246 AS patients (mean ± SD age 51 ± 12 years, 62% males, mean ± SD disease duration 17 ± 12 years) and 510 controls (mean ± SD age 42 ± 15 years, 70% males) were included. AS patients were more frequently (extremely) dissatisfied with life (17.9% versus 8.6%; P < 0.05). In the total and the employed population, less physical difficulty and higher satisfaction with interpersonal relations and leisure were associated with higher SWL, and this was somewhat stronger in patients than in controls (P < 0.1). In employed controls, but not in employed patients, satisfaction with work was independently associated with SWL. CONCLUSION: These findings highlight the importance of supporting persons with AS in ameliorating social role participation, particularly in areas like close relationships and leisure activities, which are typically ignored when treating AS.
OBJECTIVE: Participation in society of persons with chronic diseases receives increasing attention. However, little is known about which components of participation are most relevant to life satisfaction. This study examines the association between several aspects of social role participation and satisfaction with life (SWL) in patients with ankylosing spondylitis (AS) compared to population controls. METHODS: In a cross-sectional study, participants completed the Social Role Participation Questionnaire (SRPQ) and SWL scale. The SRPQ assesses several dimensions of participation (importance, satisfaction with performance, and satisfaction with time and physical difficulty) in 11 roles representing 3 domains (interpersonal relations, leisure, and work). For individuals with AS and controls, the association between role domains and SWL was examined using linear regression for each participation dimension separately, in the total and the employed population, adjusting for age, sex, education, and income. RESULTS: A total of 246 AS patients (mean ± SD age 51 ± 12 years, 62% males, mean ± SD disease duration 17 ± 12 years) and 510 controls (mean ± SD age 42 ± 15 years, 70% males) were included. AS patients were more frequently (extremely) dissatisfied with life (17.9% versus 8.6%; P < 0.05). In the total and the employed population, less physical difficulty and higher satisfaction with interpersonal relations and leisure were associated with higher SWL, and this was somewhat stronger in patients than in controls (P < 0.1). In employed controls, but not in employed patients, satisfaction with work was independently associated with SWL. CONCLUSION: These findings highlight the importance of supporting persons with AS in ameliorating social role participation, particularly in areas like close relationships and leisure activities, which are typically ignored when treating AS.
Authors: Markus Ritter; Bertram Hölzl; Martin Gaisberger; Antje van der Zee-Neuen; Victoria Strobl; Heidemarie Dobias; Julia Fuchs; Johannes Untner; Wolfgang Foisner; Martina Knapp; Sebastian Edtinger; Martin Offenbächer Journal: BMC Musculoskelet Disord Date: 2022-08-03 Impact factor: 2.562
Authors: Maike Imkamp; Valéria Lima Passos; Annelies Boonen; Suzanne Arends; Maxime Dougados; Robert Landewé; Sofia Ramiro; Filip Van den Bosch; Desirée van der Heijde; Freke R Wink; Anneke Spoorenberg; Astrid van Tubergen Journal: RMD Open Date: 2018-11-14
Authors: Laura Cano-García; Natalia Mena-Vázquez; Sara Manrique-Arija; Rocío Redondo-Rodriguez; Carmen María Romero-Barco; Antonio Fernández-Nebro Journal: Diagnostics (Basel) Date: 2021-12-02
Authors: Anna Kotulska; Eugeniusz J Kucharz; Piotr Wiland; Marzena Olesińska; Anna Felis-Giemza; Magdalena Kopeć-Mędrek; Aleksandra Zoń-Giebel; Wojciech Romanowski; Lucyna Szymczak-Bartz; Małgorzata Tłustochowicz; Jolanta Lewandowicz; Joanna Kowalska-Majka; Jolanta Bucka; Maria Majdan; Zofia Kiełbik; Mariusz Korkosz; Aneta Bielińska; Piotr Leszczyński; Katarzyna Pawlak-Buś; Mariusz J Puszczewicz; Dominik Majewski; Katarzyna Smolik; Teresa Migas-Kukla; Małgorzata Sochocka-Bykowska; Maria Szarecka; Bernadeta Luberda; Małgorzata Falenta-Hitnarowicz; Jadwiga Świkszcz-Gniadek; Wanda Lepiarz-Rusek; Grzegorz Rozwadowski; Barbara Chara; Jerzy Zajdel; Zbigniew Zdrojewski; Maria Maciejowska-Roge; Irena Rosmus-Kuczia Journal: Reumatologia Date: 2018-06-30