Literature DB >> 28614454

[Health promotion in families with paramyloidosis: the role of elders with younger family members].

Carla Roma Oliveira1,2, Álvaro Mendes3,4, Liliana Sousa2.   

Abstract

Citizens are now partners in the formal health promotion system. In the management of hereditary diseases, the role of family members is a vital source of support. Elders play a crucial role due to their long relationship with the disease and with patients in the family. However, this role has still been insufficiently explored, particularly in genetic disorders like paramyloidosis. This exploratory qualitative study analyzes the role of elders in families with paramyloidosis, in health promotion for younger members. The critical incidents technique was applied using a semi-structured interview. The study involved 18 participants who reported 76 critical incidents. The interviews were taped and submitted to content analysis. The principal results suggest the following roles for elders with younger family members: act as role models (in behaviors), encourage, inform, and support. The older generations can be mobilized by health professionals as partners to support younger generations in families with paramyloidosis.

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Year:  2017        PMID: 28614454     DOI: 10.1590/0102-311X00185515

Source DB:  PubMed          Journal:  Cad Saude Publica        ISSN: 0102-311X            Impact factor:   1.632


  2 in total

1.  From older to younger: intergenerational promotion of health behaviours in Portuguese families affected by familial amyloid polyneuropathy.

Authors:  Carla Roma Oliveira; Alvaro Mendes; Liliana Sousa
Journal:  Eur J Hum Genet       Date:  2017-03-22       Impact factor: 4.246

2.  Role of older generations in the family's adjustment to Huntington disease.

Authors:  Carla Roma Oliveira; Álvaro Mendes; Jorge Sequeiros; Liliana Sousa
Journal:  J Community Genet       Date:  2021-03-25
  2 in total

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