Hee Sun Baek1, Ki-Soo Park2, Il Soo Ha3, Hee Gyung Kang3, Hae Il Cheong3, Young Seo Park4, Joo Hoon Lee4, Hee Yeon Cho5, Min Hyun Cho1. 1. Department of Pediatrics, Kyungpook National University Hospital, Daegu, Korea. 2. Department of Preventive Medicine and Institute of Health Sciences, Gyeongsang National University Hospital, Jinju, Korea. 3. Department of Pediatrics, Seoul National University Children's Hospital, Seoul, Korea. 4. Department of Pediatrics, Asan Medical Center, Seoul, Korea. 5. Department of Pediatrics, Samsung Medical Center, Seoul, Korea.
Abstract
AIM: This study was designed to investigate the impact of paediatric end-stage renal disease (ESRD) on parents, based on the PedsQL Family Impact Module (FIM), and the relationship to the quality of life (QOL) of paediatric ESRD patients measured by PedsQL 3.0 ESRD module. METHODS: We performed a cross-sectional study using Korean translations of the PedsQL FIM and the PedsQL 3.0 ESRD module. In all, 79 patients were enrolled, including 47 children receiving dialysis and 32 children who underwent renal transplant. RESULTS: FIM scores, analyzed for every category according to treatment modality, were significantly lower in haemodialysis (HD) than in peritoneal dialysis (PD) or renal transplant patients. Mother's age, duration since diagnosis of ESRD and the existence of comorbidity were variables to have significant effects on FIM scores. The correlation between total FIM and QOL scores of paediatric patients were significant, in both parent-proxy and child-self report. CONCLUSIONS: The PedsQL FIM appears to be a useful tool for the assessment of family impact on children with ESRD. Further prospective studies focused on the QOL of parents and caregivers should be performed with the goal of improving clinical outcomes for paediatric ESRD patients.
AIM: This study was designed to investigate the impact of paediatric end-stage renal disease (ESRD) on parents, based on the PedsQL Family Impact Module (FIM), and the relationship to the quality of life (QOL) of paediatric ESRDpatients measured by PedsQL 3.0 ESRD module. METHODS: We performed a cross-sectional study using Korean translations of the PedsQL FIM and the PedsQL 3.0 ESRD module. In all, 79 patients were enrolled, including 47 children receiving dialysis and 32 children who underwent renal transplant. RESULTS: FIM scores, analyzed for every category according to treatment modality, were significantly lower in haemodialysis (HD) than in peritoneal dialysis (PD) or renal transplant patients. Mother's age, duration since diagnosis of ESRD and the existence of comorbidity were variables to have significant effects on FIM scores. The correlation between total FIM and QOL scores of paediatric patients were significant, in both parent-proxy and child-self report. CONCLUSIONS: The PedsQL FIM appears to be a useful tool for the assessment of family impact on children with ESRD. Further prospective studies focused on the QOL of parents and caregivers should be performed with the goal of improving clinical outcomes for paediatric ESRDpatients.
Authors: Ola A Alhusaini; Lamis A Wayyani; Hadeer E Dafterdar; Mariyah M Gamlo; Zainab A Alkhayat; Abeer S Alghamdi; Osama Y Safdar Journal: Saudi Med J Date: 2019-08 Impact factor: 1.484