Literature DB >> 28599596

Transitioning HIV-infected adolescents to adult care at 14 clinics across the United States: using adolescent and adult providers' insights to create multi-level solutions to address transition barriers.

Morgan M Philbin1, Amanda E Tanner2, Brittany D Chambers2, Alice Ma2, Samuella Ware2, Sonia Lee3, J Dennis Fortenberry4.   

Abstract

HIV-infected adolescents have disproportionately low rates of care retention and viral suppression. Approximately half disengage from care while transitioning to adult clinics, in part due to fragmented care systems and lack of streamlined protocols. We conducted 58 qualitative interviews with social service and health care providers across 14 Adolescent Trials Network clinics (n = 28) and 20 adult clinics that receive transitioning adolescents (n = 30) from August 2015-June 2016. We used the constant comparative approach to examine processes, barriers, and facilitators of adult care transition. Transition barriers coalesced around three levels. Structural: insurance eligibility, transportation, and HIV-related stigma; Clinical: inter-clinic communication, differences in care cultures, and resource/personnel limitations; and Individual: adolescents' transition readiness and developmental capacity. Staff-initiated solutions (e.g., grant-funded transportation) were often unsustainable and applied individual-level solutions to structural-level barriers. Comprehensive initiatives, which develop collaborative policies and protocols that support providers' ability to match the solution and barrier level (i.e., structural-to-structural), are sorely needed. These initiatives should also support local systematic planning to facilitate inter-clinic structures and communication. Such approaches will help HIV-infected adolescents transition to adult care and improve long-term health outcomes.

Entities:  

Keywords:  HIV/AIDS; adolescent health; barriers to care; care transition; qualitative

Mesh:

Year:  2017        PMID: 28599596      PMCID: PMC5573205          DOI: 10.1080/09540121.2017.1338655

Source DB:  PubMed          Journal:  AIDS Care        ISSN: 0954-0121


  30 in total

1.  Linkage to and retention in care following healthcare transition from pediatric to adult HIV care.

Authors:  Patrick Ryscavage; Thomas Macharia; Devang Patel; Robyn Palmeiro; Vicki Tepper
Journal:  AIDS Care       Date:  2016-01-13

2.  Factors affecting linkage to care and engagement in care for newly diagnosed HIV-positive adolescents within fifteen adolescent medicine clinics in the United States.

Authors:  Morgan M Philbin; Amanda E Tanner; Anna DuVal; Jonathan M Ellen; Jiahong Xu; Bill Kapogiannis; Jim Bethel; J Dennis Fortenberry
Journal:  AIDS Behav       Date:  2014-08

3.  Suffering, shame, and silence: the stigma of HIV/AIDS.

Authors:  Lynne Duffy
Journal:  J Assoc Nurses AIDS Care       Date:  2005 Jan-Feb       Impact factor: 1.354

4.  Thematic analysis and its reconceptualization as 'saliency analysis'.

Authors:  Stephen Buetow
Journal:  J Health Serv Res Policy       Date:  2009-09-17

5.  Transitioning youth with congenital heart disease from pediatric to adult health care.

Authors:  Roberta G Williams
Journal:  J Pediatr       Date:  2014-11-08       Impact factor: 4.406

6.  Experiences of health care providers in the transfer of adolescent or young adults with a chronic condition from pediatric to adult hospital care: a systematic review protocol.

Authors:  Liv Fegran; Mette S Ludvigsen; Hanne Aagaard; Lisbeth Uhrenfeldt; Thomas Westergren; Elisabeth Oc Hall
Journal:  JBI Database System Rev Implement Rep       Date:  2016-02

7.  Health care transition: youth, family, and provider perspectives.

Authors:  John G Reiss; Robert W Gibson; Leslie R Walker
Journal:  Pediatrics       Date:  2005-01       Impact factor: 7.124

8.  Transition from pediatric to adult care for youth diagnosed with type 1 diabetes in adolescence.

Authors:  Debra S Lotstein; Michael Seid; Georgeanna Klingensmith; Doug Case; Jean M Lawrence; Catherine Pihoker; Dana Dabelea; Elizabeth J Mayer-Davis; Lisa K Gilliam; Sarah Corathers; Giuseppina Imperatore; Lawrence Dolan; Andrea Anderson; Ronny A Bell; Beth Waitzfelder
Journal:  Pediatrics       Date:  2013-03-25       Impact factor: 7.124

9.  The therapeutic implications of timely linkage and early retention in HIV care.

Authors:  Kimberly B Ulett; James H Willig; Hui-Yi Lin; Justin S Routman; Sarah Abroms; Jeroan Allison; Ashlee Chatham; James L Raper; Michael S Saag; Michael J Mugavero
Journal:  AIDS Patient Care STDS       Date:  2009-01       Impact factor: 5.078

10.  Linking HIV+ adolescents into care: The effects of relationships between local health departments and adolescent medicine clinics.

Authors:  Amanda E Tanner; Morgan M Philbin; Mary A Ott; Anna Duval; Jonathan Ellen; Bill Kapogiannis; J Dennis Fortenberry
Journal:  J HIV AIDS Soc Serv       Date:  2013
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  13 in total

1.  Healthcare Transition for Youth Living With HIV: Outcomes from a Prospective Multi-site Study.

Authors:  Amanda E Tanner; Morgan M Philbin; Brittany D Chambers; Alice Ma; Sophia Hussen; Samuella Ware; Sonia Lee; J Dennis Fortenberry
Journal:  J Adolesc Health       Date:  2018-06-07       Impact factor: 5.012

2.  The Intersection Between Women's Reproductive Desires and HIV Care Providers' Reproductive Health Practices: A Mixed Methods Analysis.

Authors:  Amanda E Tanner; Brittany D Chambers; Morgan M Philbin; Samuella Ware; Nneze Eluka; Alice Ma; Elizabeth N Kinnard; J Dennis Fortenberry
Journal:  Matern Child Health J       Date:  2018-09

3.  Adherence Self-Management and the Influence of Contextual Factors Among Emerging Adults With Human Immunodeficiency Virus.

Authors:  Ann-Margaret Dunn Navarra; Robin Whittemore; Suzanne Bakken; Michael J Rosenberg; Maurade Gormley; John Bethea; Marya Gwadz; Charles Cleland; Eva Liang; Gail D'Eramo Melkus
Journal:  Nurs Res       Date:  2020 May/Jun       Impact factor: 2.381

4.  Adolescent and Adult HIV Providers' Definitions of HIV-Infected Youths' Successful Transition to Adult Care in the United States.

Authors:  Morgan M Philbin; Amanda E Tanner; Alice Ma; Brittany D Chambers; Samuella Ware; Elizabeth N Kinnard; Sophia A Hussen; Sonia Lee; J Dennis Fortenberry
Journal:  AIDS Patient Care STDS       Date:  2017-10       Impact factor: 5.078

5.  The Association between Incarceration and Transactional Sex among HIV-infected Young Men Who Have Sex with Men in the United States.

Authors:  Morgan M Philbin; Elizabeth N Kinnard; Amanda E Tanner; Samuella Ware; Brittany D Chambers; Alice Ma; J Dennis Fortenberry
Journal:  J Urban Health       Date:  2018-08       Impact factor: 3.671

6.  Youths' Experiences of Transition from Pediatric to Adult Care: An Updated Qualitative Metasynthesis.

Authors:  Maureen Varty; Barbara Speller-Brown; Leslie Phillips; Katherine Patterson Kelly
Journal:  J Pediatr Nurs       Date:  2020-09-20       Impact factor: 2.145

7.  Characteristics of adolescents living with HIV receiving care and treatment services in antiretroviral therapy clinics in Cambodia: descriptive findings from a cross-sectional study.

Authors:  Siyan Yi; Sovannary Tuot; Khuondyla Pal; Vohith Khol; Say Sok; Pheak Chhoun; Laura Ferguson; Gitau Mburu
Journal:  BMC Health Serv Res       Date:  2018-10-16       Impact factor: 2.655

Review 8.  Adherence to Medication During Transition to Adult Services.

Authors:  Bianca R Campagna; Kristen Weatherley; Eyal Shemesh; Rachel A Annunziato
Journal:  Paediatr Drugs       Date:  2020-10       Impact factor: 3.022

9.  Challenges and facilitators of transition from adolescent to adult HIV care among young adults living with HIV in Moshi, Tanzania.

Authors:  Rita V Masese; Julia V Ramos; Leonia Rugalabamu; Severa Luhanga; Aisa M Shayo; Kearsley A Stewart; Coleen K Cunningham; Dorothy E Dow
Journal:  J Int AIDS Soc       Date:  2019-10       Impact factor: 5.396

10.  Transition Pathways Out of Pediatric Care and Associated HIV Outcomes for Adolescents Living With HIV in South Africa.

Authors:  Roxanna Haghighat; Elona Toska; Lucie Cluver; Laurie Gulaid; Daniella Mark; Anurita Bains
Journal:  J Acquir Immune Defic Syndr       Date:  2019-10-01       Impact factor: 3.731

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