Literature DB >> 28571497

Strategies to Improve Quality of Life at the End of Life: Interdisciplinary Team Perspectives.

Rana Sagha Zadeh1, Paul Eshelman1, Judith Setla2,3, Hessam Sadatsafavi1.   

Abstract

This ethnographic study draws on the experiences of members of interdisciplinary care teams working with end-of-life care patients to identify strategies to improve quality of life through care practices. We surveyed 133 staff and volunteers (physicians, physician assistants, nurse practitioners, registered nurses, social workers, chaplains, administrators, and volunteers) who provide end-of-life care to patients in both home and institutional settings for 4 organizations in 2 counties in Upstate New York. Survey responses were analyzed using qualitative content analysis. The results identified numerous strategies to enhance and safeguard quality of life for end-of-life care patients and their family members. These strategies can be categorized into 6 domains: organization philosophy and mission; organizational policies; caregivers' behaviors and practices; symptom management; facility design, operation and management; and patient, family member, and caregiver experience. The diverse list of identified strategies indicates that improving care to address the unique, complex, multilayered dimensions of quality of life at the end of life requires a multidisciplinary approach and consistency among care providers, including administration, clinical management, front-line caregivers, and support staff. When all of these strategies are used in harmony, care can truly be enhanced.

Entities:  

Keywords:  advanced life-limiting illness; end-of-life care; good death and dying; patient experience; quality of life; symptom management; terminal illness

Mesh:

Year:  2017        PMID: 28571497      PMCID: PMC5866728          DOI: 10.1177/1049909117711997

Source DB:  PubMed          Journal:  Am J Hosp Palliat Care        ISSN: 1049-9091            Impact factor:   2.500


  13 in total

1.  Increased access to palliative care and hospice services: opportunities to improve value in health care.

Authors:  Diane E Meier
Journal:  Milbank Q       Date:  2011-09       Impact factor: 4.911

2.  Factors important to patients' quality of life at the end of life.

Authors:  Baohui Zhang; Matthew E Nilsson; Holly G Prigerson
Journal:  Arch Intern Med       Date:  2012-08-13

3.  End-of-life care: an interdisciplinary perspective.

Authors:  Deborah Viola; David C Leven; Jean C LePere
Journal:  Am J Hosp Palliat Care       Date:  2008-12-29       Impact factor: 2.500

Review 4.  Quality of life: its definition and measurement.

Authors:  D Felce; J Perry
Journal:  Res Dev Disabil       Date:  1995 Jan-Feb

5.  Caregiving near the end of life: unmet needs and potential solutions.

Authors:  Patricia A Mangan; Kathryn L Taylor; K Robin Yabroff; David A Fleming; Jane M Ingham
Journal:  Palliat Support Care       Date:  2003-09

6.  Factors considered important at the end of life by patients, family, physicians, and other care providers.

Authors:  K E Steinhauser; N A Christakis; E C Clipp; M McNeilly; L McIntyre; J A Tulsky
Journal:  JAMA       Date:  2000-11-15       Impact factor: 56.272

7.  Issues in end-of-life care: patient, caregiver, and clinician perceptions.

Authors:  Stuart J Farber; Thomas R Egnew; Janet L Herman-Bertsch; Thomas R Taylor; Gregory E Guldin
Journal:  J Palliat Med       Date:  2003-02       Impact factor: 2.947

8.  Family perspectives on end-of-life care at the last place of care.

Authors:  Joan M Teno; Brian R Clarridge; Virginia Casey; Lisa C Welch; Terrie Wetle; Renee Shield; Vincent Mor
Journal:  JAMA       Date:  2004-01-07       Impact factor: 56.272

9.  Palliative care at the end of life: comparing quality in diverse settings.

Authors:  Judith A Paice; J Cameron Muir; Susan Shott
Journal:  Am J Hosp Palliat Care       Date:  2004 Jan-Feb       Impact factor: 2.500

Review 10.  The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence.

Authors:  Caroline Woodman; Jessica Baillie; Stephanie Sivell
Journal:  BMJ Support Palliat Care       Date:  2015-05-19       Impact factor: 3.568

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